Steve and all,

        My server is finally working now, so I can respond.

        These "use of lose it posts got me to thinking. The people with polio
coined the phrase, "Post-Polio Syndrome" to denote the destruction of
healthy muscle fibers remaining in atrophied muscles. Polio, per se, did
not "cause" this destruction, rather it was brought on by active over-use
of already weakened muscles.

        Maybe we should begin to speak of a Post Cerebral Palsy Syndrome in
a like manner?

        What do you guys think??

Bobby



>Deri,
>
>Seems to me one of the problems is we don't know about CP and Aging and we
>need to find out.  We find our CP bodies go through severe and unexpected
>"traumas."  Between 15 to 46 a number of us have symptoms, events, and
>changes to our bodies that medical and therapeutic procedures may ease and
>usually don't sufficiently remedy.
>
>When we go to doctors there's often a gap between what they know and what we
>present them.
>
>Do we say Anee at 15-20, Denise at 23, Mag, Carla, names and ages escape me
>at this hour, experience "accelerated aging?".  Kyle and I had our "onsets"
>at 46.  He was athletic, I wasn't--though very active.
>
>I sense we need to restate CP to include the likelihood of further injury
>and difficulties if only to be more watchful and aware of possibilities.  We
>much need more and better "medicine," better informed doctors.
>
>I assess you're questioning whether the phenomena of CP and Aging exists or
>exists distinct from Aging.  To me CP speeds up and aggravates wear and
>tear, then impedes full repair and worsens matters over time.  Remedies
>elude.   Whatever we call it, something's happening, and it isn't all in our
>minds.
>
>Steve M.
>
>
>From: Deri James
>Subject: Re: Use it or loose it??
>Date: Thu, 4 Nov 1999 04:31:02 +0100
>
>
>I'm not entirely convinced by the arguments for 'Ageing with CP' being an
>entirely separate issue than just 'Ageing'. Of course physical abuse, be it
>inflicted from over doing sports when
>young, incorrect dietary habits, substance abuse, or an abusive spouse, will
>come back to haunt us as we age, just as they would anyone.
>
>It is hard to gauge which problems are purely CP related.
><snip>
>
>Cheers
>
>--
>Deri James