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Subject:
From:
Anu Arsalo <[log in to unmask]>
Reply To:
Cerebral Palsy List <[log in to unmask]>
Date:
Mon, 16 Jan 2012 13:42:11 -0800
Content-Type:
text/plain
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Wow.  I'm so sorry.  You must be furious.  Hope you will continue to heal.
Anu

On Mon, Jan 16, 2012 at 10:23 AM, James Fee <[log in to unmask]> wrote:

> Hi All,
>
> I am just coming out of a chapter of my life that has been the second most
> horrendous of
> them all.  On October 11th I had a cervical spinal fusion.  The surgeon
> noticed "considerable"
> swelling and left the interbation tube in place.  I was in ICU for three
> days when an attending
> took it upon himself to remove it.  My airway promptly swelled closed
> completely, I had to be
> reinterbated and I bleed from the nose and mouth.  After that I remained
> in a drug induced comma for 14 days.  I finally had to have a trach, and a
> feeding tube placed.  All the while (so
> I'm told by my wife) the nurses were running around trying to learn how to
> "treat" me for my
> cerebral palsy and were perturbed that I was on meds. for it, nor was I
> having therapy in a
> rehab facility.  I was supposed to be in the hospital for a total of 4
> days, I was actually there for 28 days.  I wasn't allowed to eat or drink
> ANYTHING by mouth, because tests "indicated" that I
> would aspirated EVERYTHING.  I was sent home with the feeding tube still
> in me, whereupon I
> took it upon myself to begin eating normally without any dire
> consequences.  The residual effect of all this is that one of my vocal
> cords is now paralysed and I don't know if I'll ever get it back.
>
> I'm curious to know if anyone else has encountered such ignorant nonsense?
>
> Thanks,
> Jim Fee
>
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