yeah, i know i get ignored by some. they view judy as my keeper. instead of listening to me they look at her. 

like in a resturant, they ask her what i want. 


--- On Wed, 7/30/08, Kathy <[log in to unmask]> wrote:

> From: Kathy <[log in to unmask]>
> Subject: Re: Dealing with the public if you have CP
> To: [log in to unmask]
> Date: Wednesday, July 30, 2008, 9:14 PM
> Yeah I know what you mean - I have two degrees myself and am
> in a 
> wheelchair, too. Unless I say something witty at first,
> they ignore me. 
> It gets old fast, doesn't it?
> 
> Kat
> 
> Bob Segalman wrote:
> > Kat
> >
> > Most people who see me on the street view me as
> defective. They ignore the
> > name plate on the back of my wheelchair the says:
> >
> > 	"Bob Segalman, Ph.D., Sc.D. (Hon.) - the only
> American with cerebral
> > palsy  known to 	hold two doctorates"
> >
> > - Bob
> >
> > -----Original Message-----
> > From: Cerebral Palsy List
> [mailto:[log in to unmask]] On Behalf Of
> > Kathy
> > Sent: Wednesday, July 30, 2008 4:56 PM
> > To: [log in to unmask]
> > Subject: Re: Genetic Link to CP??
> >
> > Well, I don't consider myself a
> "defect," either (or else I'd be sitting 
> > at home doing nothing, like a lump) but unfortunately
> AB people think we 
> > are. :(  Hell, I know plenty of deaf/HOH people who
> don't want to 
> > identify themselves as disabled because they don't
> want to be seen as 
> > defective - of course that means they don't wear
> the hearing aids or 
> > cochlear implant processors that could help them so
> much.
> >
> > You really stirred up some hornets with this one! ;)
> >
> > Kat
> >
> > Linda Macaulay wrote:
> >   
> >> James,
> >>
> >> Read or don't read what I post to the list. 
> Form your own thoughts 
> >> and opinions and express them as you like.  I got
> the email and 
> >> thought it would be worthy of some comment....and
> apparently I was 
> >> right ;)
> >>
> >> For the record, I like who I am and certainly
> don't think I am 
> >> DEFECTIVE...One of the reasons the article title
> made me react so 
> >> vehemently "No Way!"  However, I was
> intrigued and read on and perhaps 
> >> there is a grain of salt to a genetic connection
> that may make 
> >> conditions such that CP COULD occur.  Certainly
> doubt it would ever be 
> >> found to be like Down's Syndrome or other
> genetic diseases.
> >>
> >> Linda
> >>
> >> On Jul 30, 2008, at 5:41 PM, James Fee wrote:
> >>
> >>     
> >>> [log in to unmask] wrote:
> >>>       
> >>>> Hang on, I don't think Linda was
> calling CP a genetic defect, just 
> >>>> that CP
> >>>> could be caused by genetic mutations.
> >>>>
> >>>>         
> >>> I don't think she CALLED it anything, just
> suggested we read an 
> >>> article about it might be..
> >>>
> >>> Jim Fee
> >>>       
> >>>> Kat
> >>>>
> >>>> Original Message:
> >>>> -----------------
> >>>> From: James Fee [log in to unmask]
> >>>> Date: Wed, 30 Jul 2008 17:17:51 -0400
> >>>> To: [log in to unmask]
> >>>> Subject: Re: Genetic Link to CP??
> >>>>
> >>>>
> >>>> I really wish people would get this
> straight, and I don't know why 
> >>>> if urks me SO MUCH that they don't,
> perhaps its a male virility thing.
> >>>>
> >>>> There is a genetic defect that causes a
> lower of calcium in the 
> >>>> bones, children born with this defect
> break bones wille-nillie...in 
> >>>> fact some parents have been accused on
> child abuse because of it.  
> >>>> But the broken bones ARE NOT a genetic
> defect the lower calcium is.
> >>>>
> >>>> ITS THE SAME WITH CP, DAMN IT.  CP
> (simplified to the ridiculous) is 
> >>>> broken nerve fibers.  SOMTIMES those
> broken nerve fibers  ARE CAUSED 
> >>>> by a genetic defect in the Mom, BUT CP IS
> NOT a genetic defect.
> >>>>
> >>>> Okay, I'll go back to my corner now.
> >>>> Jim Fee
> >>>>
> >>>> Linda Macaulay wrote:
> >>>>
> >>>>         
> >>>>> Here's something I found on
> BabyCenter -- take a look!
> >>>>>
> >>>>> Australian study seeks genetic roots
> of cerebral palsy
> >>>>>
> >>>>>
> >>>>>
> >>>>>           
> >
> http://www.babycenter.com/204_australian-study-seeks-genetic-roots-of-cerebr
> >
> >   
> >>>> al-palsy_5234805.bc
> >>>>         
> >>>>> (If clicking doesn't work, simply
> cut and paste the link into your 
> >>>>> Web browser.)
> >>>>>
> >>>>>
> >>>>> When I first saw the title, I thought
> "No way!", but then in 
> >>>>> reading it, maybe...
> >>>>>
> >>>>> Heck, my mom and I both have Factor V
> Leiden which is a genetic 
> >>>>> mutation to be more prone to blood
> clots.  When we learned I had it 
> >>>>> and then mom too, we realized that was
> probably why she had so many 
> >>>>> miscarriages and that I came
> early...placenta bloodclotting...thus 
> >>>>> why I must take injections of blood
> thinner when pregnant and be 
> >>>>> monitored closely...
> >>>>>
> >>>>> Any thoughts?
> >>>>>
> >>>>> Linda
> >>>>>
> >>>>>
> >>>>>           
> 
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