C-PALSY Archives

Cerebral Palsy List

C-PALSY@LISTSERV.ICORS.ORG

Options: Use Forum View

Use Monospaced Font
Show Text Part by Default
Show All Mail Headers

Message: [<< First] [< Prev] [Next >] [Last >>]
Topic: [<< First] [< Prev] [Next >] [Last >>]
Author: [<< First] [< Prev] [Next >] [Last >>]

Print Reply
Subject:
From:
Linda Walker <[log in to unmask]>
Reply To:
Cerebral Palsy List <[log in to unmask]>
Date:
Thu, 14 Aug 2008 13:25:04 -1000
Content-Type:
text/plain
Parts/Attachments:
text/plain (214 lines)
yes he has an iep and an aide in the classroom. he does well in 
school but writing is very slow and labor intensive for him. I am 
hoping he can write papers by dictating to the computer.

At 01:15 PM 8/14/2008, you wrote:
>lisa, Does he have an IEP?  Do you know?
>
>---- Original message ----
> >Date: Thu, 14 Aug 2008 08:16:26 -0500
> >From: The Stone Family <[log in to unmask]>
> >Subject: Re: Say it Sam XPI
> >To: [log in to unmask]
> >
> >Long story short.  The school would not provide a device for home use and we
> >were insistent on signing (they didn't want to go that route as they had no
> >strong folks in this area) as we could not afford a device on our own.  Even
> >so, the devise he uses at school is a minimal devise (Go Talk, I believe).
> >Thank goodness we have a speech therapist with higher aspirations of what he
> >is capable.  He has been able to get some basic communications out, but in
> >the last year has really been frustrated that he couldn't get more
> >understanding to us.
> >
> >We finally spoke to the right person and now have him on Medicaid and MDCP -
> >Both have been unbelievable at getting things that we just haven't been able
> >to do on our own.  We are now able to get more therapies and we are hoping
> >this is going to be huge asset to him.
> >
> >His background - He is ambulatory (wheelchair used for malls, theme parks,
> >etc), non-verbal, but understands everything you say, stubborn as a mule,
> >seizures under control (finally), has a great sense of humor, spoiled
> >rotten, and just a really awesome kid. He has not been challenged in the
> >educational setting and we are really pushing back on them to educate him.
> >I see what you guys are doing and there is no reason he can't be as
> >productive with the right education.
> >
> >
> >
> >-----Original Message-----
> >From: Cerebral Palsy List [mailto:[log in to unmask]] On Behalf Of
> >Tamar Raine
> >Sent: Thursday, August 14, 2008 1:10 AM
> >To: [log in to unmask]
> >Subject: Re: Say it Sam XPI
> >
> >I'm just curious why your son's communication needs haven't been met before=
> >? these devices have been around since the 90's?? =0A=A0=0A~~~~~~~~~~~~~~~~=
> >~~~~~~~~~~~~~~~~~~=0Ahttp://www.zazzle.com/TamarMag*=0ATamar Mag Raine=0ATa=
> >[log in to unmask]
> >~~~~~~~~=0A=0A=0A=0A----- Original Message ----=0AFrom: The Stone Family <a=
> >[log in to unmask]>=0ATo: [log in to unmask]: Wednesd=
> >ay, August 13, 2008 9:56:03 PM=0ASubject: Re: Say it Sam XPI=0A=0AThanks fo=
> >r the advice.=A0 At almost 12, he has really had no means of=0Acommunicatin=
> >g (some sign language and just being independent) so we are=0Aexcited.=A0 E=
> >ncouragement and advice are both welcome!=0A=0A=0A=0A-----Original Message-=
> >----=0AFrom: Cerebral Palsy List [mailto:[log in to unmask]] On Beh=
> >alf Of=0AAnthony Arnold=0ASent: Wednesday, August 13, 2008 11:19 PM=0ATo: C=
> >[log in to unmask]: Re: Say it Sam XPI=0A=0ASpeaking from =
> >experience, just allow him to play and explore on his own, I=0Adid that a f=
> >ew years back when I changed vocabularies, and it was very=0Aeffective. Whe=
> >n he locates whatever he wants, it definitely encourages him=0Ato try more,=
> > but you don't want to get on him for incomplete sentences, just=0Aback off=
> > until you know he knows where something is. I was once with=0Asomebody who=
> > insisted on complete sentences from somebody who barely got=0Atheir device=
> > and that was totally stressing and discouraging them =0A=0AThanks, =0AAnth=
> >ony Arnold =0ARemote Troubleshooter for PRC =0Awww.anthonyarnold.net=0Aanth=
> >[log in to unmask] Message-----=0AFrom: Cerebral P=
> >alsy List [mailto:[log in to unmask]] On Behalf Of=0AThe Stone Fami=
> >ly=0ASent: Wednesday, August 13, 2008 10:40 PM=0ATo: [log in to unmask]
> >.ORG=0ASubject: Say it Sam XPI=0A=0AWill do - the rep is in town on Monday =
> >so we will get our training then - in=0Athe meantime, we are starting to pl=
> >ay around with it and will be trying to=0Adetermine what will work best for=
> > Matt (pictures and speech for each).=A0 He=0Afound tacos today and was ver=
> >y proud of himself!=0A=0AWill catch up later next week once I have had a bi=
> >t of time with it.=0A=0A=0A=0A-----Original Message-----=0AFrom: Cerebral P=
> >alsy List [mailto:[log in to unmask]] On Behalf Of=0AAnthony Arnold=
> >=0ASent: Wednesday, August 13, 2008 10:31 PM=0ATo: [log in to unmask]
> >RG=0ASubject: Re: I came back=0A=0AYou have to keep us updated on your expe=
> >rience with the Sam XPI Tablet, I=0Adon't think I have seen one before, but=
> > at conferences I tend to stay away=0Afrom other company's booths. If there=
> >'s a device I truly want to look at, I=0Ahave my attendants do my snooping,=
> > they know what to ask and how to get=0Acompanies to talk. =0A=0AThanks, =
> >=0AAnthony Arnold =0ARemote Troubleshooter for PRC =0Awww.anthonyarnold.net=
> >[log in to unmask] Message-----=0AFrom: Cer=
> >ebral Palsy List [mailto:[log in to unmask]] On Behalf Of=0AThe Sto=
> >ne Family=0ASent: Tuesday, August 12, 2008 8:00 PM=0ATo: [log in to unmask]
> >CORS.ORG=0ASubject: Re: I came back=0A=0AIt is a Say It Sam XPI Tablet by W=
> >ords Plus.=0A=0A-----Original Message-----=0AFrom: Cerebral Palsy List [mai=
> >lto:[log in to unmask]] On Behalf Of=0AMichael H. Collis=0ASent: Tu=
> >esday, August 12, 2008 7:09 PM=0ATo: [log in to unmask]: =
> >Re: I came back=0A=0ALisa, what type of device is he getting? =0A=0A---- Or=
> >iginal message ----=0A>Date: Tue, 12 Aug 2008 17:45:28 -0500=0A>From: The S=
> >tone Family <[log in to unmask]>=A0 =0A>Subject: Re: I came back=A0=
> > =0A>To: [log in to unmask]>=0A>Thanks - I have enjoyed being he=
> >re with this group -=A0 I will definitely=0Asign=0A>up as the device he is =
> >getting is so intimidating.=A0 We are just now getting=0A>my son the types =
> >of services he has needed - we just were not aware they=0A>were available.=
> >=A0 You guys are great!=0A>=0A>=0A>=0A>-----Original Message-----=0A>From: =
> >Cerebral Palsy List [mailto:[log in to unmask]] On Behalf Of=0A>Ken=
> >dall D. Corbett=0A>Sent: Tuesday, August 12, 2008 5:35 PM=0A>To: C-PALSY@LI=
> >STSERV.ICORS.ORG=0A>Subject: Re: I came back=0A>=0A>Lisa,=0A>=0A>I really t=
> >hink it could be helpful to you.=A0 There are a lot of people with=0A>varyi=
> >ng degrees of expertise in AAC, but they are a good group, and welcome=0A>a=
> >ll kinds of questions.=A0 I'm not an AAC user, but I feel welcome there.=0A=
> >The=0A>place I work is building expertise in AAC, and that's how I got invo=
> >lved=0A>=0A>On Tue, Aug 12, 2008 at 4:27 PM, The Stone Family <=0A>allthest=
> >[log in to unmask]> wrote:=0A>=0A>> We will be receiving our first communic=
> >ation device tomorrow for my 12=0A>year=0A>> old son.=A0 Would this group b=
> >e something that could benefit us?=0A>>=0A>> Lisa=0A>>=0A>>=0A>> -----Origi=
> >nal Message-----=0A>> From: Cerebral Palsy List [mailto:[log in to unmask]
> >ORS.ORG] On Behalf=0AOf=0A>> Kendall D. Corbett=0A>> Sent: Tuesday, August =
> >12, 2008 4:54 PM=0A>> To: [log in to unmask]>> Subject: Re: I ca=
> >me back=0A>>=0A>> ACOLUG=3DAugmentative Communication OnLine Users Group.=
> >=0A>>=0A>> Here's the webpage with the basic info on it.=0A>>=0A>> http://d=
> >isabilities.temple.edu/programs/assistive/acolug/=0A>>=0A>> It's a pretty f=
> >reewheeling group, like C-Palsy=0A>>=0A>> On Tue, Aug 12, 2008 at 1:42 PM, =
> >Michael H. Collis <[log in to unmask]>=0A>> wrote:=0A>>=0A>>=A0 > ACOLUG?=A0 =
> >What's that?=0A>> >=0A>> > ---- Original message ----=0A>> > >Date: Tue, 12=
> > Aug 2008 11:23:16 -0600=0A>> > >From: "Kendall D. Corbett" <kendall.corbet=
> >[log in to unmask]>=0A>> > >Subject: Re: I came back=0A>> > >To: [log in to unmask]
> >ICORS.ORG=0A>> > >=0A>> >=A0 >Anthony,=0A>> > >=0A>> > >Welcome back!=A0 I'=
> >ve kind of kept up through ACOLUG.=A0 Mike, that might=0A>> > >interest you=
> >.=A0 If so, ask Anthony or me about it!=0A>> > >=0A>> > >On Sat, Aug 9, 200=
> >8 at 10:52 PM, Anthony Arnold=0A>> > ><[log in to unmask]>wrote:=0A>=
> >> > >=0A>> > >> Friends,=0A>> > >>=0A>> > >>=0A>> > >>=0A>> > >> The majori=
> >ty of you probably remember me, I'm Anthony Arnold from=0A>> Grand=0A>> > >=
> >> Forks North Dakota, the augmentative and alternative communicator=0Awho=
> >=0A>> > works=0A>> > >> in technical support at the Prentke Romich Company.=
> > I decided to=0Atake=0A>> a=0A>> > >> little break from the list while trav=
> >eling, but never did rejoin=0A>until=0A>> > now,=0A>> > >> and I sure have =
> >missed everybody. Life is basically the same, I=0A>remain=0A>> > >> living =
> >independently and employed with the Prentke Romich Company,=0A>but=0A>> > >=
> >> however I was offered a position in the research and development=0A>> > d=
> >epartment=0A>> > >> which I start in October, we had to get another guy tra=
> >ined before I=0A>> > move=0A>> > >> up. I will sure miss helping people, bu=
> >t I'm ready for more=0A>> challenging=0A>> > >> work. I also enjoy hearing =
> >my parents tell friends of the family the=0A>> > >> exciting news, and that=
> > I know the inners and what components work=0A>and=0A>> > >> which=0A>> > >=
> >> don't.=0A>> > >>=0A>> > >>=0A>> > >>=0A>> > >> I'm looking forward to reu=
> >nite with everybody!=0A>> > >>=0A>> > >>=0A>> > >>=0A>> > >> Thanks,=0A>> >=
> > >> Anthony Arnold=0A>> > >> Remote Troubleshooter for PRC=0A>> > >>=0A>> >=
> > >> www.anthonyarnold.net <http://www.anthonyarnold.net/>=0A>> > >> anthony=
> >@anthonyarnold.net <mailto:[log in to unmask]>=0A>> > >>=0A>> > >>=0A>>=
> > > >>=0A>> > >>=0A>> > >> -----------------------=0A>> > >>=0A>> > >> To ch=
> >ange your mail settings or leave the C-PALSY list, go here:=0A>> > >>=0A>> =
> >> >> http://listserv.icors.org/SCRIPTS/WA-ICORS.EXE?SUBED1=3Dc-palsy=0A>> >=
> > >>=0A>> > >=0A>> > >=0A>> > >=0A>> > >--=0A>> > >=0A>> > >=0A>> > >Kendall=
> >=0A>> > >=0A>> > >An unreasonable man (but my wife says that's redundant!)=
> >=0A>> > >=0A>> > >The reasonable man adapts himself to the world; the unrea=
> >sonable one=0A>> > >persists in trying to adapt the world to himself. There=
> >fore, all=0A>> progress=0A>> > >depends on the unreasonable man.=0A>> > >=
> >=0A>> > >-George Bernard Shaw 1856-1950=0A>> > >=0A>> > >------------------=
> >-----=0A>> > >=0A>> > >To change your mail settings or leave the C-PALSY li=
> >st, go here:=0A>> > >=0A>> > >http://listserv.icors.org/SCRIPTS/WA-ICORS.EX=
> >E?SUBED1=3Dc-palsy=0A>> >=0A>> > -----------------------=0A>> >=0A>> > To c=
> >hange your mail settings or leave the C-PALSY list, go here:=0A>> >=0A>> > =
> >http://listserv.icors.org/SCRIPTS/WA-ICORS.EXE?SUBED1=3Dc-palsy=0A>> >=0A>>=
> >=0A>>=0A>>=0A>> --=0A>>=0A>>=0A>> Kendall=0A>>=0A>> An unreasonable man (bu=
> >t my wife says that's redundant!)=0A>>=0A>> The reasonable man adapts himse=
> >lf to the world; the unreasonable one=0A>> persists in trying to adapt the =
> >world to himself. Therefore, all progress=0A>> depends on the unreasonable =
> >man.=0A>>=0A>> -George Bernard Shaw 1856-1950=0A>>=0A>> -------------------=
> >----=0A>>=0A>> To change your mail settings or leave the C-PALSY list, go h=
> >ere:=0A>>=0A>> http://listserv.icors.org/SCRIPTS/WA-ICORS.EXE?SUBED1=3Dc-pa=
> >lsy=0A>>=0A>> -----------------------=0A>>=0A>> To change your mail setting=
> >s or leave the C-PALSY list, go here:=0A>>=0A>> http://listserv.icors.org/S=
> >CRIPTS/WA-ICORS.EXE?SUBED1=3Dc-palsy=0A>>=0A>=0A>=0A>=0A>-- =0A>=0A>=0A>Ken=
> >dall=0A>=0A>An unreasonable man (but my wife says that's redundant!)=0A>=0A=
> >>The reasonable man adapts himself to the world; the unreasonable one=0A>pe=
> >rsists in trying to adapt the world to himself. Therefore, all progress=0A>=
> >depends on the unreasonable man.=0A>=0A>-George Bernard Shaw 1856-1950=0A>=
> >=0A>-----------------------=0A>=0A>To change your mail settings or leave th=
> >e C-PALSY list, go here:=0A>=0A>http://listserv.icors.org/SCRIPTS/WA-ICORS.=
> >EXE?SUBED1=3Dc-palsy=0A>=0A>-----------------------=0A>=0A>To change your m=
> >ail settings or leave the C-PALSY list, go here:=0A>=0A>http://listserv.ico=
> >rs.org/SCRIPTS/WA-ICORS.EXE?SUBED1=3Dc-palsy=0A=0A-----------------------=
> >=0A=0ATo change your mail settings or leave the C-PALSY list, go here:=0A=
> >=0Ahttp://listserv.icors.org/SCRIPTS/WA-ICORS.EXE?SUBED1=3Dc-palsy=0A=0A---=
> >--------------------=0A=0ATo change your mail settings or leave the C-PALSY=
> > list, go here:=0A=0Ahttp://listserv.icors.org/SCRIPTS/WA-ICORS.EXE?SUBED1=
> >=3Dc-palsy=0A=0A-----------------------=0A=0ATo change your mail settings o=
> >r leave the C-PALSY list, go here:=0A=0Ahttp://listserv.icors.org/SCRIPTS/W=
> >A-ICORS.EXE?SUBED1=3Dc-palsy=0A=0A-----------------------=0A=0ATo change yo=
> >ur mail settings or leave the C-PALSY list, go here:=0A=0Ahttp://listserv.i=
> >cors.org/SCRIPTS/WA-ICORS.EXE?SUBED1=3Dc-palsy=0A=0A-----------------------=
> >=0A=0ATo change your mail settings or leave the C-PALSY list, go here:=0A=
> >=0Ahttp://listserv.icors.org/SCRIPTS/WA-ICORS.EXE?SUBED1=3Dc-palsy=0A=0A---=
> >--------------------=0A=0ATo change your mail settings or leave the C-PALSY=
> > list, go here:=0A=0Ahttp://listserv.icors.org/SCRIPTS/WA-ICORS.EXE?SUBED1=
> >=3Dc-palsy=0A
> >
> >-----------------------
> >
> >To change your mail settings or leave the C-PALSY list, go here:
> >
> >http://listserv.icors.org/SCRIPTS/WA-ICORS.EXE?SUBED1=3Dc-palsy
> >
> >-----------------------
> >
> >To change your mail settings or leave the C-PALSY list, go here:
> >
> >http://listserv.icors.org/SCRIPTS/WA-ICORS.EXE?SUBED1=c-palsy
>
>-----------------------
>
>To change your mail settings or leave the C-PALSY list, go here:
>
>http://listserv.icors.org/SCRIPTS/WA-ICORS.EXE?SUBED1=c-palsy

-----------------------

To change your mail settings or leave the C-PALSY list, go here:

http://listserv.icors.org/SCRIPTS/WA-ICORS.EXE?SUBED1=c-palsy

ATOM RSS1 RSS2