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Subject:
From:
Linda Macaulay <[log in to unmask]>
Reply To:
Cerebral Palsy List <[log in to unmask]>
Date:
Sat, 29 Mar 2008 13:47:59 -0400
Content-Type:
text/plain
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Kathy Jo,

Whether or not your pain is CP related or wheelchair related isn't as  
important as determining what is wrong that is causing your pain.   
Did your doctor examine you to determine the cause?  Did he refer you  
to a specialist?  If not, it doesn't sound like he is taking your  
concerns seriously.  No one should have to be in pain if it can be  
helped and your note just made me feel like he dismissed your comments.

Linda
On Mar 29, 2008, at 1:36 PM, Kathy Pink wrote:

> I am glad this came up on this list!  I am 36 (I will be 37 July  
> fifth).
> Over the last month, I have been experiencing physical pain  
> (especially in
> my hips and lower back).  I went for my yearly Camp Physical , I  
> brought
> this up to my regular family physician and he said, "That's what  
> you get for
> being in a wheelchair most of the time" or something to that  
> effect .  as I
> write this, I am wondering if this is a side effect of having  CP.?
>
>
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>
> On Fri, Mar 28, 2008 at 7:16 PM, ehthiers <[log in to unmask]>  
> wrote:
>
>> Yeah for mentioning OT.  There medical and non medical methods and  
>> it will
>> depend on your clinic.  I remember my internship a gal was going  
>> to the
>> pain clinic for nerve blocks that weren't working.   What did work  
>> was
>> aqua
>> therapy for her complex pain syndrome.  What you need is a multifocal
>> management program.
>>
>> Beth t.
>>
>>> -----Original Message-----
>>> From: Cerebral Palsy List [mailto:[log in to unmask]]
>>> On Behalf Of ken barber
>>> Sent: Friday, March 28, 2008 2:12 PM
>>> To: [log in to unmask]
>>> Subject: Re: pain clinics
>>>
>>> because of kidney problems there is little i take in the way
>>> of pain meds. other than tylenol i take nothing for pain.
>>>
>>> --- Heather Beaudry <[log in to unmask]> wrote:
>>>
>>>> Professionals at a good pain clinic do a lot of different things.
>>>> P.T.s and O.T.s can help you with more orthopedically
>>> correct ways of
>>>> doing things so that you are less likely to inadvertently
>>> contribute
>>>> to your pain.
>>>>
>>>> The physicians will often work on medication issues
>>>> -- many people who go to pain clinics with chronic pain are taking
>>>> lots of medications that are no longer effective.  Through
>>> charting it
>>>> is possible to get a better idea of pain patterns, which
>>> medications
>>>> (if any) are effective and how to treat with medication.
>>>>
>>>> Psychologists and counselors often work with people at pain
>>> clinics on
>>>> pain management techniques -- mindfulness meditation, pacing,
>>>> refocusing, etc.
>>>>
>>>> Then there are often groups with other people who have
>>> pain.  It can
>>>> be really helpful to hear their ideas of how they cope.
>>>>
>>>> Most of the people I know who have gone to pain clinics (I am a
>>>> psychologist) had severe, chronic back and/or neck pain or
>>> migraines.
>>>>
>>>> Hope that helps,
>>>>
>>>> Heather
>>>>
>>>>  -------------- Original message
>>>> ----------------------
>>>> From: ken barber <[log in to unmask]>
>>>>> my new doc has suggested a pain clinic for me to handle the pain
>>>>> from the permanent tendinitis in
>>>> my
>>>>> hands and arms. you know the arms and hands that
>>>> could
>>>>> not possibly be injured because i have cp.
>>>>>
>>>>> what does a pain clinic do?
>>>>>
>>>>>
>>>>>
>>>>>
>>>>
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>>>
>>>
>>>
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