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Subject:
From:
ken barber <[log in to unmask]>
Reply To:
Cerebral Palsy List <[log in to unmask]>
Date:
Fri, 14 Mar 2008 13:29:54 -0700
Content-Type:
text/plain
Parts/Attachments:
text/plain (224 lines)
if you want to use it "with my name" you have
permission on my part. 

--- "Kendall D. Corbett" <[log in to unmask]>
wrote:

> With all your permission, (deleting identifiable
> attribution of
> course), I'd like to be able to use the "gist" of
> this discussion in
> an ethics presentation I'm participating in in a
> conference next
> month.  It would probably be used to supplement
> course work in
> disability studies where an ethical component is
> included.
> 
>  This gets to the heart of a matter my parents were
> given a "choice"
> in when I was an infant.  The underlying condition
> that caused my CP
> was hydrocephalus, and back in 1960/1961 the success
> rates of treating
> hydrocephalus were pretty low.  The surgeon that
> treated me approached
> my parents and said that they could treat the
> condition, or "let
> Nature take it's course," which would have led to my
> death.  Lucky for
> me (the verdict's still out for the rest of the
> world), my parents
> elected to treat the condition.  Life may have been
> easier for my
> parents had they taken the other road, but it's a
> decision my dad
> couldn't make because of the ethical code he
> subscribes to.
> 
> The first time I went to a national convention for
> the association of
> University Centers I work for, I became acquainted
> with a woman who
> has a son with Down Syndrome.  She and I had
> listened to a
> presentation on "preventing birth defects."  The
> model put forth for
> prevention was therapeutic abortion, which in her
> words, "doesn't
> prevent disability, it prevents my son!"  So, for
> those of you who are
> offended, or are about to be offended, count me in.
> 
> On Fri, Mar 14, 2008 at 10:01 AM, ken barber
> <[log in to unmask]> wrote:
> > that is where you get to when you consider any
> life
> > less than sacred.
> >
> >
> > --- Trisha Cummings <[log in to unmask]> wrote:
> >
> > > Hi Kyle,
> > >
> > >    What I am curious about is when she says they
> > > saved her baby without
> > > her knowing - Is she saying - she would have had
> > > them not save the baby?
> > > While it is true that CP rates are up because
> they
> > > can save babies
> > > earlier and earlier - it ends up being a moral
> > > question - Deciding who
> > > lives and who dies. Unless you are clairvoyant
> one
> > > can't predict how the
> > > child will turn out - I mean Amber was projected
> to
> > > be much more
> > > seriously disabled than she is. One should
> > > understand from the moment
> > > one is pregnant that a fat healthy baby may well
> not
> > > be the outcome -
> > > and if you are not able to accept anything but
> the
> > > Gerber Baby- you need
> > > to be neutered. Because you are seriously too
> stupid
> > > to have children in
> > > the first place. Plus then the first time you
> > > exhibit a defect - they
> > > should kill you. So anyone with anything other
> > > perfect health buys the
> > > farm? Ouch, no Roosevelt - no Hawking.
> > >
> > >                Trisha - who also thinks she
> about to
> > > be offended - very
> > > offended at that
> > >
> > > -----Original Message-----
> > > From: Cerebral Palsy List
> > > [mailto:[log in to unmask]] On Behalf
> > > Of Cleveland, Kyle E.
> > > Sent: Friday, March 14, 2008 8:53 AM
> > > To: [log in to unmask]
> > > Subject: Re: not what if/ and rate of CP not the
> > > same
> > >
> > > Let me get this straight--I want to be
> absolutely
> > > sure I understand what
> > > you're implying here.  "Saving" premature babies
> in
> > > order to bring them
> > > into the ranks of the living is problem?  So
> medical
> > > science should not
> > > be used to protect and preserve a life if that
> life
> > > is too fragile to
> > > survive without it? =20
> > >
> > > I daresay that many of us on this list would not
> be
> > > here if that were
> > > the case.  Would it have been better to let us
> all
> > > perish because, after
> > > all, life with a kid with disabilities is going
> to
> > > be more difficult
> > > than raising a healthy child, right?
> > >
> > > There are a bunch of us on this list whose
> parents
> > > were advised to
> > > "institutionalize" us as small children because
> we
> > > would never walk,
> > > talk, or have cognitive abilities greater than
> the
> > > average grapefruit.
> > > I think as a group we've disproved that notion.
> > >
> > > I think I am about to be offended.  I hope you
> can
> > > change my mind.
> > >
> > > Kyle
> > >
> > > -----Original Message-----
> > > From: Cerebral Palsy List
> > > [mailto:[log in to unmask]] On Behalf
> > > Of [log in to unmask]
> > > Sent: Friday, March 14, 2008 8:21 AM
> > > To: [log in to unmask]
> > > Subject: Re: not what if/ and rate of CP not the
> > > same
> > >
> > > First off I was not saying... what if... I
> mentioned
> > > the fact that the
> > > dr's=20
> > > did not tell me they were saving my child.  I
> was
> > > mention the stem cell
> > > thing=20
> > > so if any of you had saved your cord blood you
> may
> > > want to check into
> > > it.  I=20
> > > think all they did was give him his blood back
> but
> > > it did not say... so
> > > you=20
> > > would have to look into it.
> > > =20
> > > As to the rates of CP.... they were the 1 birth
> > > problem that was way
> > > down=20
> > > 'UNTIL' 20 or 30 years ago when doctor started
> > > 'saving'  and
> > > experimenting and=20
> > > making millions of preemies and their families. 
> The
> > > rate were down
> > > because of=20
> > > better prenatal care but then when they started
> > > adding the smaller and
> > > smaller=20
> > > babies back to the living the rates of CP when
> right
> > > back up.
> > > =20
> > > Just a thought-
> > > Kristina
> > >
> > >
> > >
> > > **************It's Tax Time! Get tips, forms,
> and
> > > advice on AOL Money
> > > &=20
> > > Finance.
> > >
> >
>
(http://money.aol.com/tax?NCID=3Daolprf00030000000001)
> 
=== message truncated ===



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