Anthony,

Thanks very much for your e-mail.

We have looked into HBOT.  Unfortunately our nearest centre is having to
close because of lack of funds.  However, we are still searching and
gathering as much info as we can.

As you so rightly say funding for all these treatments is a problem and we
are busyly saving as much as we can for Josie's (thats our daughters name)
needs throughout her life.

I was interested to hear that you use a stick to type.  My daughter has just
received an appointment to attend an assessment at a centre called ACE which
is based in Oxfordshire, England.  They assess children like Josie to find
out what would be the best way for them to access computer technology.  I
hope I am not pinning too much on this appointment, but Josie is such an
intelligent little girl trapped in a body that will not allow her to do the
things she wants and is capable of.

Anyway, enough of my waffling.  It was very nice to meet you, so to speak,
and thanks for your advice.

Hope to speak to you again soon.

Best wishes,
Nikki Filtness and Josie.


-----Original Message-----
From: Anthony Hall <[log in to unmask]>
To: [log in to unmask] <[log in to unmask]>
Date: 03 February 2000 14:36
Subject: Re: INTRODUCTION


>nicola, my friend has a little girl who is s.q/ also. she is 8 and jsut
>returned form having hbot.  i was absolutely amazed at the improvement.
>they had done eveythinfg else.  i am going to get hbot mself as soon as i
>cna raise teh moneyh.  i know anotheer adult that it really helped alot.
>robert hartsoe, form another list said he would help me raise money.  just
>wanted to mention it is worth a try.
>if you wnat roberts email i have it here.  he has grandson with cp and is
>helping lots of peoople find good deals for hbot.
>anthony
>39 with cp and a stupid stick that cant tell one key from another when
>trying to type.  need to trade it in. it has over 1000000 keys on it.
>
>
>>From: PAUL FILTNESS <[log in to unmask]>
>>Reply-To: "St. John's University Cerebral Palsy List"
>><[log in to unmask]>
>>To: [log in to unmask]
>>Subject: INTRODUCTION
>>Date: Wed, 2 Feb 2000 15:55:40 -0000
>>
>>Hi, my name is Nicola Filtness and my dughter Jose is 6 years old and =
>>has Spastic Quadraplegia.  She is a very bright intelligent girl but, =
>>unfortunately, physically she is equivalent to a baby.  Any help or =
>>advice would be appreciated.
>>
>>Sorry, I am new to this kind of thing so don't quite know what to say.
>>
>>Regards,
>>Nicola.
>
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