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From: | |
Reply To: | St. John's University Cerebral Palsy List |
Date: | Mon, 1 Feb 1999 23:40:29 +0000 |
Content-Type: | text/plain |
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get a service-dog for your husband, the dog hears the kid's all movements.
Try 1 firm Paws with a Cause
>> -----Original Message-----
>> From: R. Hintz [SMTP:[log in to unmask]]
>> Sent: Saturday, January 30, 1999 2:10 AM
>> To: [log in to unmask]
>> Subject: Deaf/"Head-injuried" /CP Parent & Safety Issues(long)
>>
>> I have 2 children, 3& 5 & am in the middle of a divorce. I have worked
>> professionally to support the rights of parents with disabilities. My
>> husband
>> & I both have CP. He also has a severe hearing impairment, ADHD & has been
>> diagnosed with several cognitive impairments including memory, information
>> encoding & personalities disorders. He basically functions like a person
>> with
>> a closed-head injury or TBI in that his behaviors & judgment are very
>> inconsistent. He is also on high doses of meds which make it very
>> difficult to
>> wake him up. I wish to emphasize that he has resisted all rehabilitation
>> efforts at work and at home.
>>
>> But now he is seeking overnight visits with both children who are both
>> seriously asthmatic. We are seeking a GAL (child advocate). However, if
>> that
>> fails, I am looking for ways to deal with emergency situations which would
>> work independent of him to keep the children safe. For example, fire. He
>> says
>> he has a smoke detector with a flashing light. However, this may not wake
>> him
>> up & he is very slow to respond. He has never woken up independently to
>> care
>> for the children.
>>
>> 1). I've heard there are smoke alarms that can notify the fire department
>> directly. He lives in an apartment so a security system may not be an
>> option.
>> If it exists, where can I get it?
>>
>> 2). He cannot hear the apt. buildings fire alarm & this has been
>> demonstrated.
>> This is a large apt. complex. Any ideas?
>>
>> 3). He cannot hear the children wheeze or cough even when he's awake. Its
>> worst @ night. Are there baby cry alarms that can pick up wheezing?
>>
>> 4). Are there ways to notify 911 personnel of these issues so they can
>> respond
>> appropriately to a medical emergency?
>>
>> Addressing these issues & others would be most helpful. The hearing on
>> GAL/
>> overnights is on 2/2.
>>
>> Again, the solutions cannot rely on him. He totally denies there are
>> concerns
>> & even when modifications or accommodations are put into place, he doesn't
>> use
>> them.
>> Thank you for any assistance
>
>
Asdis Jenna Astradsdottir
[log in to unmask] at my home and [log in to unmask] at school.
Tjarnarmyri 15
170 Seltjarnarnes
Iceland.
phone/fax 354-5611659.
cellphone 354-6981659.
* NEVER GIVE UP! * :-)
THE WORLD IS WONDERFUL!
GOD IS WITH YOU EVERYWHERE!
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