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Reply To: | St. John's University Cerebral Palsy List |
Date: | Sun, 27 Feb 2000 15:25:25 -0300 |
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where can i obtain more information about this? i live in Argentina( so
far..) and work with handicapped children.Saliva is always a problen in
their social issues.i have read long time ago about some kind of salt in UK,
that might reduce the excessive effects, do you know something about this?
i appreciate all the information you can give. Thanks! annie the pt
-----Original Message-----
De: Jim Challenor <[log in to unmask]>
Para: [log in to unmask] <[log in to unmask]>
Fecha: Domingo 27 de Febrero de 2000 04:38
Asunto: Re: intro and salivary gland reduction
>Hi Shawn,
>
>I have a son with major CP (simple description, saves me time when
>writing). Kristofer is 10 is attending mainstream school and has just
>started grade 5 this year. He cannot talk and has a lot of trouble with
>communication for many reasons.
>
>A number of years ago we stopped feeding Kristofer orally and moved to a
>peg and Gtube/button. However after moving this way he continued to have
>problems with aspiration pneumonia. And the only thing that was still
>there to cause a problem was the saliva. As a result of a number of
>trials(failed) and other investigations (including a fundoplication) we
>found that it was the saliva.
>
>Therefore we then had a bi-lateral sub mandibular salivery gland excision
>and tympanic neurectomy. In our case we have had fantastic results
>(surgery was Dec 1995) and can say that it has not caused him any untoward
>results.
>
>Kristofer still has adequate salivery production and occassionally still
>dribbles ( usually involved with response to drugs or seizures).
>
>If you need more information, just let me know..
>
>Regards
>
>Jim
>>I joined this list because of my daughter who is ten and has fluctuating
>>cp. I have questions for this group and I am hoping you would please be
so
>>kind as to help me with them. The first right now is that I am thinking
of
>>having salivary reduction surgery done for her. I have always been
against
>>it before. But now that I have heard they can change the direction of
>>gland and put them down the throat. I tried robinal with her and it
seemed
>>to make her pasty and tired. She is in the fourth grade and I don't think
>>the drooling is helping with her social issues. She speaks and walks with
>>a hand held but not by herself. Any info or opinion you can give me I
>>would appreciate. I am concerned about the pain and recovery but also
>>maybe in the long run she would rather not have to deal with the excessive
>>saliva anymore either. It gets on her papers and her hair always has to
be
>>tied back because it will stick to her chin and all the other reasons.
>>thanks so much,
>>Shawn
>
>
>Jim Challenor
>
>e-mail: [log in to unmask] "Never Give In,
>snail: PO Box 742 Lismore. Never Give Up,
> NSW.2480. Australia. In The End You Will
Win"
>Phone: 61 2 66252394 "Unknown"
>Fax : 61 2 66252394
>Mobile: 0418 669618
>
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