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Date: | Wed, 1 Dec 1999 08:55:34 -0800 |
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<<Disclaimer: Verify this information before applying it to your situation.>>
Oops, forgot this in my summary. Another group... that I didn't even
know about. Easy to see why all these groups need to band together
for clout.
Diane
> In defense of tall national and many local orgabizaitons and many
> independent Celiacs. Most of us have written to the FDA, Contacted high
> level officals of the FDA. We have had constant communciations the
> reality is that the Congress of the USA determines the changes allowed to
> be made by the FDA. We have been to Washington and asked Congress to act
> on this matter. We have asked for grant funding. Support for research has
> been slow in coming, but we still have not secured enough support for our
> cause from congress. Once we get a supporter in congress their is another
> election and we have to start over. Celiac need to contact there
> legistators in Washington and as new elections come up find out how
> candidates stand on the issues that Celiac facee. Including labeling,
> financial support for research, health care, etc.
>
> Annette Bentley
> American Celiac Society
> 59 Crystal Ave, West Orange, NJ 07052
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