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Reply To: | St. John's University Cerebral Palsy List |
Date: | Mon, 5 Jun 2000 10:54:32 -0500 |
Content-Type: | text/plain |
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I did a similar account for the month of March and 15 people accounted for
85% of all messages on this list.
I would hope that a "sub-division" does not exist between adults
and parents. We are a community centered around a neuromuscular impairment.
I often wish my mother had had access to a similar list. I don't think she
ever talked to another parent with a CP child.
Bobby
>Deborah dear friend,
>
>With 300 plus list members I can only imagine what a nightmare it would be if
>everyone posted as much as I do. Ye Gads! Everyone's computer would blow up!
>
>You are definitely in my heart, you don't have to be a CP adult. I'm not
>even a CP adult, unless you count Virtual CP (which I brazenly claim). At
>times I have felt a connection with the parents that I didn't initially
>anticipate. Although I am an adult with an acquired disability, and you are
>a parent without a disability who had the lovely surprise of having
>disability come into your life through your children, we seem to share the
>experience of being thrown into a different culture, unique unto its own.
>
>I tend to regard CP adults as my mentors at this point (in spite of my
>"grandma status"), although I have a couple of mentors with other
>disabilities. I have such close ties on this list now though, that the CP
>world feels closer to me than any other "sub group" of disabilities including
>my own.
>
>There are so few people in my situation who's peripheral neuropathy has
>progressed as mine has, that our issues are very different. I'm at flank
>speed through the ocean of disability rights advocacy.
>
>Sometimes I see posts from parents and read through without replying since I
>don't have children myself. I'm not always sure what to say and leave
>replies to parents who know more about other parent's issues. I am
>definitely in the parent's corner, I'm just afraid of saying something
>stupid. I am reading though.
>
>It seems as though there are two sub communities on this list: Those with CP
>children, and adults with CP. Threads keep things organized and separated,
>but we are certainly together in our goals and aspirations.
>
>Betty
>(I was supposed to have CP; I just got in the wrong line)
>
>
>
>
>In a message dated 06/05/2000 9:08:05 AM Eastern Daylight Time,
>[log in to unmask] writes:
>
>> I will try better, but for some reason I don't have
>> any comments on allot of the subjects, maybe because I am a mother with a
>> child who has CP, rather than having CP myself. I will try harder to
>> understand how it feels maybe as my syndromes become full blown I will feel
>> different. I appreciate the input from the group though, helps me to
>> understand the frustration, hope and success that my boys are feeling.
>> Thanks again to the group.
>> Deborah mom of 4
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