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From: | |
Reply To: | St. John's University Cerebral Palsy List |
Date: | Sun, 26 Mar 2000 11:42:48 -0500 |
Content-Type: | text/plain |
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Do you mean a cure? Or ways to deal with it better? Yeah, I agree, ol Jerry
seems pretty slimey!
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> From: Russ White <[log in to unmask]>
> To: [log in to unmask]
> Subject: Re: A feeling question..
> Date: Sunday, March 26, 2000 11:30 AM
>
> Most disabled folks believe we are disabled for a purpose, I can only
figure
> my purpose is to seek the answers for my disability (Friedreich's Ataxia)
as
> well as others. I am an MDAer but also a Jerry's Orphan as of two months
ago
> when I learned that MDA does not have mouse research for FA and little
for
> DMD and SMA. The people who contribute and donate are probably paying
for VP
> vacations and Jerry's estate in Australia. I have the urge to take over
his
> spot only if I can find more support than what I got now. I want to
cover
> all Genetic neuromuscular disabilities. I did this; I organized
interested
> parties from the ataxia list, other forms of ataxia MDA does not cover
(other
> forms are there), created us a list, unified and discussed this. Then I
> created the GDU list linked bellow. I urge this list to do the same and
have
> a reprenitive join GDU on the link below.
> So Sincere,
>
> Russ White
> Orlando, FL
> <A HREF="http://www.onelist.com/group/GeneticDisabilitiesUnite">ONElist
:
> GeneticDisabilitiesUnite</A>
> <A HREF="http://members.aol.com/rwtw128/mypage.html">My
Autobiography</A>
> "Do not suppose that, if you find something hard to achieve, it is beyond
> human capacity; rather, if something is possible and appropriate for man,
> assume that it must also be within your own reach." - Marcus Aurelius,
_The
> Meditations_
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