Bobby,
Great concept!
I can live with that!
Steve
From: Bobby Greer <[log in to unmask]>
Subject: Post Cerebral Palsy Syndrome
Date: Thu, 4 Nov 1999 12:01:14 -0500
Steve and all,
My server is finally working now, so I can respond.
These "use of lose it posts got me to thinking. The people with
polio
coined the phrase, "Post-Polio Syndrome" to denote the destruction of
healthy muscle fibers remaining in atrophied muscles. Polio, per se, did
not "cause" this destruction, rather it was brought on by active
over-use
of already weakened muscles.
Maybe we should begin to speak of a Post Cerebral Palsy Syndrome
in
a like manner?
What do you guys think??
Bobby
>Deri,
>
>Seems to me one of the problems is we don't know about CP and Aging and
we
>need to find out. We find our CP bodies go through severe and
unexpected
>"traumas." Between 15 to 46 a number of us have symptoms, events, and
>changes to our bodies that medical and therapeutic procedures may ease
and
>usually don't sufficiently remedy.
>
>When we go to doctors there's often a gap between what they know and
what we
>present them.
>
>Do we say Anee at 15-20, Denise at 23, Mag, Carla, names and ages
escape me
>at this hour, experience "accelerated aging?". Kyle and I had our
"onsets"
>at 46. He was athletic, I wasn't--though very active.
>
>I sense we need to restate CP to include the likelihood of further
injury
>and difficulties if only to be more watchful and aware of
possibilities. We
>much need more and better "medicine," better informed doctors.
>
>I assess you're questioning whether the phenomena of CP and Aging
exists or
>exists distinct from Aging. To me CP speeds up and aggravates wear and
>tear, then impedes full repair and worsens matters over time. Remedies
>elude. Whatever we call it, something's happening, and it isn't all
in our
>minds.
>
>Steve M.
>
>
>From: Deri James
>Subject: Re: Use it or loose it??
>Date: Thu, 4 Nov 1999 04:31:02 +0100
>
>
>I'm not entirely convinced by the arguments for 'Ageing with CP' being
an
>entirely separate issue than just 'Ageing'. Of course physical abuse,
be it
>inflicted from over doing sports when
>young, incorrect dietary habits, substance abuse, or an abusive spouse,
will
>come back to haunt us as we age, just as they would anyone.
>
>It is hard to gauge which problems are purely CP related.
><snip>
>
>Cheers
>
>--
>Deri James
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