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Subject:
From:
Jim Lyles <[log in to unmask]>
Date:
Wed, 21 May 1997 23:50:07 EST
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<<Disclaimer:  Verify this information before applying it to your situation.>>

                          Newsletter Roundup
                          ------------------
                         Compiled by Jim Lyles

We exchange newsletters with several other celiac groups.  In this
article I will summarize some of what we've learned from our
newsletter swapping.


.................................................................
:                                                               :
:        Excerpts from the San Antonio CS Support Group         :
:        ----------------------------------------------         :
: newsletter: Mar. 1997     Lynn Rainwater, Secretary/Treasurer :
:                                              1023 Cloverbrook :
:                                   San Antonio, TX  78245-1604 :
:...............................................................:

Hershey's Miniatures are all run on the same production line, and are
made in the same molds.  This includes Krackels, which are not
gluten-free (GF).  Although the molds are thoroughly cleaned between
runs, a slight possibility of cross-contamination exists.  This was
originally reported in The Nutmeg Celiac and then confirmed via a
phone call to Hersey's.  For more information, call (800) 468-1714.


.......................................................
:                                                     :
: Excerpts from the Midlands Chapter 13 Support Group :
: --------------------------------------------------- :
: newsletter: April 1997      Sandra K. Allen, editor :
:                                     Route 1 Box 707 :
:                             Fort Calhoun, NE  68023 :
:.....................................................:

"Living With a Chronic Illness" was the title of a talk by Steven J.
Kingsbury at the 1996 CSA Conference.  Dr. Kingsbury is a
psychiatrist/psychologist at the Dallas Veterans Affairs Medical
Center in Texas.

Dr. Kingsbury revealed at the beginning of his talk that he had
Multiple Sclerosis and would give his talk sitting down.  He said he
had diagnosed himself but several of his doctor friends did not
believe him.  He searched out a specialist in this area and confirmed
his diagnosis.  He suggested one should always get more than one
opinion and go to the best doctor available in that field.

Dr. Kingsbury suggested several ways of coping with a chronic illness
that he has learned first hand:

  1. People suffer less when they have enjoyable things to do.

  2. Never have as a goal anything a dead man can do.  [For example,
     don't say "I won't eat gluten;" say, "I will eat tasty, gluten-
     free food."]

  3. Don't focus on what you are missing.

  4. It is important to have good support.

  5. Have positive goals.

  6. Doctors should encourage hope.

  7. Lower stress to get better control over your immune system.

Dr. Kingsbury referred to his wife as the "Angel from Hell" and gave
her a great deal of credit in helping him cope with his disease.  He
was an inspiration to all of us who had the privilege of hearing him
speak.--Marge Campbell


.............................................................
:                                                           :
:           Excerpts from the _CSA/GC Newsletter_           :
:           -------------------------------------           :
: March 1997                            Lois Walter, editor :
:               Celiac Sprue Association of Greater Chicago :
:                                           124 Newton Ave. :
:                                     Glen Ellyn, IL  60137 :
:...........................................................:

Rich Chocolate Ovaltine does not contain gluten, as it does not
contain malt.  (The Chocolate Malt flavor does contain gluten.)  This
information was verified in a letter from Hummel Nutrition,
distributors of Ovaltine.  The letter adds, "...please note that all
production equipment is thoroughly cleaned between production runs of
different flavors..."

La Preferida states in a letter "...we do not have a gluten-free
product list....Both the La Preferida Taco Seasoning Mix and the
distilled vinegar found in several of our products are gluten-free..."

Dietary Specialties is now carrying Bi-Aglut products, including
several pastas, apricot-flavored cookies, chocolate chip cookies, tea
biscuits, and crackerbread.  Also, they have GF White Rice and Brown
Rice breads that are pre-sliced and double-wrapped to retain their
fresh taste.  Their baker advises these breads are good for sandwiches
and make wonderful toast.  Call them at (800) 544-0099 or write to
Dietary Specialties, PO Box 227, Rochester, NY 14601.

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