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Amy,

I was diagnosed three years ago while at Yale (in New Haven, CT) by Dr.
Anne Swedlund.  She is a GI specialist.  It took her only a couple of
tests to do the diagnosis.  Although she works for the Yale Health Plan
and may not be able to help you directly, she may be able to refer you to
a specialist in the Danbury area.

There is a Celiac support group in the Hartford area (and I think there
might be one in the Danbury area).  Let me know if you're interested and I
can get the name and number of the Hartford leader.

My mother was diagnosed in Minneapolis after I found out I had the
disease.  She just went to her doctor, told him that her son had the
disease (she had symptoms all of her life, but nobody ever figured out
why), they did the biopsy, and she was diagnosed with it.  Again, if
you're interested, I can get the name and number of her doctor.  Also,
there is an extensive support group in the Twin Cities area (Midwest
Gluten Intolerance Group).  I can get you their contact info if you're
interested.

As a personal observation to your trials with doctors, you have my
sympathy.  It must be tough banging your head against the wall so much.
I was surprised to hear you're having so much trouble, however, since all
of the doctors who have worked with me have been very receptive to the
condition.  I thought the age of doctors who wouldn't investigate a
problem like this was a thing of the past, but I guess not.

I wonder, though, if you couldn't get some attention by asking your doctor
to check for Celiac Disease.  Could you just ask your doctor to do the
biopsy (while not on a GF diet, of course)?  It sounds like you have
plenty of evidence if you have already tried the diet and have felt
better.

Good luck, and let me know if you would like any of the information I
offered above.

Warren Anderson
Marlborough, MA