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Reply To: | St. John's University Cerebral Palsy List |
Date: | Sun, 12 Sep 1999 15:32:37 -0500 |
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Welcome , Barb! What's TES and Mayatek?? Kathy
----- Original Message -----
From: Barb <[log in to unmask]>
To: <[log in to unmask]>
Sent: Saturday, September 11, 1999 4:24 PM
Subject: TES
> I dont think I introduced myself before, so here goes. I have a 3y
daughter
> with mild spastic diplegia, complex partial seizures and sensory
integration
> dysfunction. We are big on fixing problems before they are really
problems.
> Currently looking into TES for her very low tone trunk. Her spasticity is
> across her hips and lower back but her abdomen, chest and shoulder girdle
is
> VERY weak. She has started with what I call her pregnant lady stance, she
> rocks her weight for ward on her hips and sways her shoulders back to keep
> her balance.She also seems to have difficulty with bowel movelments, she
> never seems aware of the urge(?) and definately does not bear down. I
> suspect her bowels pushing is allthere is to it with out her bearing down.
> All this seems to be a result of her increasingly weak trunk. We have done
> extensive chest, abd, and breathing work for over a year with very little
> results. So the next step to us and her therapists is TES. But have
> discovered there are more fish in the sea than Mayatek, the most commonly
> known provider of TES machines. My questions for you guys are, how do you
> like it if doing it, how well did insurance pay(if they paid at all), and
> were alternatives to Mayatek offered to you?
>
> Thanks a million, Barb
>
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