Kendall D. Corbett wrote:
> Alllan,
>
> Kat's suggestions are great, and I echo them. As for the issues with Daniel
> not remembering to hold his head up and drooling, although he's physically
> and cognitively capable of doing both with gentle reminders reminds me of
> myself. I have relatively severe neck dystonia, and my head is often cocked
> at an angle. Like Daniel, I'm also capable of holding my head up, but often
> forget. I'm currently getting physical therapy that's been very helpful
> with the head tilt. Daniel may be able to receive physical therapy services
> through his school, if he doesn't already.
>
> Has there been anything that seems to have brought about your wife's
> increasing irritation with Daniel's issues? I'm from Wyoming, and there is
> a parent information center/parent education network here. If you aren't in
> touch with your state developmental disabilities planning council, they'd
> probably be a great resource to find the PIC/PEN in Georgia. Here's a link
> to the Georgia DD council website.
>
> http://web.me.com/gcdd/GCDD/Home.html
>
> and here's a link to Parents Educating Parents, which appears to be the
> Georgia version of Wyoming's PIC/PEN:
>
> http://www.peppinc.org/
>
>
>
> Kendall
>
> An unreasonable man (but my wife says that's redundant!)
>
> The reasonable man adapts himself to the world; the unreasonable one
> persists in trying to adapt the world to himself. Therefore, all progress
> depends on the unreasonable man.
>
> -George Bernard Shaw 1856-1950
>
>
> On Fri, Mar 20, 2009 at 10:50 AM, Allan Olive <[log in to unmask]> wrote:
>
>> Hello All,
>>
>> I just signed up because I am looking for some help and I am having the
>> hardest time finding what I need.
>>
>> I live in Columbia County Georgia and I have a 12 year old son with
>> moderate
>> CP. He has impaired speech and motor skills. He is in a wheelchair but
>> can
>> crawl. He can speak basic words with effort. He is toilet trained.
>>
>> To get right to it, I know that the divorce rate is high for families with
>> children
>> of disabilities. My wife and I divorced when my son was around 6 or 7. I
>> have
>> split custody so I have him 15 days out of the month. I am remarried, and
>> that is where my problem is.
>>
>> My wife loves my son Daniel. But lately she is growing more and more
>> annoyed and aggravated with him. It shows in how she talk to him and
>> treats
>> him. She is almost always angry when he is over. She has not always been
>> this way with him, but it is getting worse and worse. You can almost cut
>> the
>> tension in the air when it is his time to be there.
>>
>> He tends to slump in his chair and hang his head to one side and to keep
>> one
>> of his hands clenched in a fist. If you look at him and tell him to sit up
>> he
>> will . He will self correct all of those things. He will sit there with
>> his mouth
>> open and watch tv or play and he tends to drool if he forgets to swallow.
>> If
>> you tell him to close his mouth and swallow he will with no problems. But
>> after
>> a few minutes he reverts back and may start to drool again.
>>
>> This is a huge issue for my wife. She does not understand why he has to
>> constantly be reminded. If you look at him he will immediately close his
>> mouth
>> and swallow because he knows he should be doing that. But for some reason
>> it really upsets my wife that he constantly has to be reminded and does not
>> do it on his own. She thinks he knows he should and just chooses not too.
>> I
>> disagree. I don't like to see it either, but when I do, I try to lovingly
>> remind
>> him to do it. She says I am babying him. Am I? I don't know. I expect
>> him
>> to do it, but I don't get angry with him if he fails to.
>>
>> What should I do here? I am at a total loss. This has really become a
>> problem between my wife and I. Is there a medical explanation as to why he
>> constantly does that? Can he not be expected to remember to do those
>> things on his own?
>>
>> Are their support groups for families that struggle with these issues? Is
>> counseling available from people who have been there and understand? Are
>> their on-line resources available that may help me?
>>
>> Thanks in advance for any response.
>>
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>
>
>
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