Cindy,

You are in Lancaster, PA?  Me too...Age 36, mild cp...

Linda Macaulay



On May 17, 2009, at 12:32 PM, Cindy Mallory wrote:

> My son got a wheel chair at about that age. I called the insurance  
> company
> first and was told it wouldn't be covered since son was ambulatory;  
> but
> then I  had an OT who presently works in Lancaster, PA write up a  
> lengthy
> script for the  neccessity for a wheelchair and insurance covered  
> it. My son used
> it  at school because of fatigue walking down the halls and also on  
> long
> outings to  the zoo or museum. By high school he got another  
> wheelchair
> because of growth  and I gave the other one to charity. At present,  
> he refuses to
> use this  wheelchair and is walking long distances much better  
> although he
> gets blisters  on feet when overextending himself. My suggestion is  
> to get an
> evaluation by an  OT who specializes in W/C and once your child  
> gets one,
> insurance doesn't seem  to refuse another as child ages  
> approximately every 5
> years I think.  I believe your child would quickly outgrow the jogger
> though. By the way, I  consider my son with mild CP as well. He's  
> 18 now and I'm
> going to see this OT  for a driving evaluation because I think he  
> would need
> hand controls since he  gets spasms in his legs with excitement or  
> fear. So
> we're on another  adventure.....
> Cindy
>
>
> In a message dated 5/17/2009 12:09:34 P.M. Eastern Daylight Time,
> [log in to unmask] writes:
>
> Hello=2C=20
>
> I am concerned Mary's (9) right side weakness is  showing up more
> throughout=
> the day as she ages.  For instance  yesterday she slept well but  
> woke up li=
> mping very heavily on her right  weak leg=2C this usually only  
> happens at
> th=
> e end of a stressful  day.   Are there any good links about the  
> effects of
> g=
> rowth/stress on a child with mild to moderate CP?  To day her limp  is
> fairl=
> y mild but I have noticed it throughout the day for the last year  and
> befor=
> e it was only in the evening. I have also noticed when tired her   
> right
> foot=
> is turning toe in more.  I can't get her walker for while  but I am  
> trying =
> to get her a used wheel chair or jogging stroller for  longer outings.
>
> Thanks=2C
>
> John  Runer
>
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