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Date: | Fri, 28 Sep 2007 19:28:55 -0700 |
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i have been getting botox in the neck to keep pressure
off the 2 herniated disk i have in the cyrvical area.
it has helped a good bit. at this time i do not know
how my new insurance in this area will handle that
aspect of medical care.
about every 3 months is my time too. i hope they'll
keep letting me go to Emory for that. had a great
neuro with a motion disorder clince there who is quite
well know for dystonia treatment.
--- "Cleveland, Kyle E."
<[log in to unmask]> wrote:
> OK, so how's everyone doing CP-wise? As for me,
> I've found Botox. Anyone else have any experience
> with this stuff? It's been a godsend for me. I get
> shot about every 3 months or so and a heck of a lot
> of stretching in between. I guess we're going to
> start using some drug called "Myoblock" next time
> around. Apparently the body doesn't develop the
> same accomodation to the botulin toxin. I also
> found a kick-butt orthotist in town that built an
> incredible AFO for me--makes a night and day
> difference in my gait.
>
> Last year I had an aneurysm pop somewhere in my gut
> and came pretty close to going 'casters up'. The net
> result was that I lost about 30 pounds in the
> hospital and have managed to keep it off. That
> helps enormously. Every pound you lose is one pound
> less to carry on a battered old frame.
>
> I've also found a new med called Lyrica
> (pregabalin). The stuff originally was prescribed
> for folks with diabetic nerve pain, but they are
> discovering it helps with a host of CNS issues. My
> pain load has dropped remarkably. Lyrica and
> Zanaflex (tizanidine) at night are the only two CP
> meds I'm taking now. I'm doing better than I have
> been in years.
>
> Enough about me, what about everyone else? Bring me
> up to date on everything.
>
> Kyle
>
> ________________________________
>
>
> ---- Original message ----
> >Date: Fri, 28 Sep 2007 15:02:18 -0700
> >From: ken barber <[log in to unmask]>
> >Subject: Re: Hello again
> >To: [log in to unmask]
> >
> >we occasionally talk about cp if we have to.
>
>
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