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Subject:
From:
ken barber <[log in to unmask]>
Reply To:
Cerebral Palsy List <[log in to unmask]>
Date:
Mon, 9 Apr 2007 15:53:10 -0700
Content-Type:
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  acutally my doc says i strained my tendons over and
over and over 8-16 hours a day overcoming the dystonic
spastisity in my arms and uper trunk just to do my job
and my tendons just became permanant. you know as
young people we were told you just overcome it. well i
hurt myself overcoming it. especially during those
times i was working with jewelery sized tools and the
tiny screws taking apart computers and rebuilding the
guts. 

my side effect was a dizzyiness, heart pounding,
almost like a panic attack. i woke judy one night
thinking i might be about to have some kind of heart
failure. looked in the physicians desk  guied and all
that was listed as possible side effects. so i have
not tried it in any form again. 
 
  
  
--- "Kendall D. Corbett" <[log in to unmask]>
wrote:

> Ken,
> 
> Janet got a pump about a year ago, and it's worked
> fairly well for her.  She
> was getting over-medicated on oral baclofen, but the
> pump doses work
> relatively well.  If the oral was causing nausea or
> other symptoms for
> you, ITB might not be the way to go.
> 
> She's also got tendonitis symptoms that sound quite
> a bit like what you've
> described in the past.  She hoped the pump would
> help some with that, by
> reducing the spasticity in her arms, but it hasn't. 
> Have you found anything
> that's helped with your tendonitis?
> 
> 
> On 4/8/07, ken barber <[log in to unmask]> wrote:
> >
> > mag it is great that the baclofen pump worked so
> well
> > for you. i wish i did not get side effects with
> > baclofen.
> >
> > --- Tamar Raine <[log in to unmask]> wrote:
> >
> > > Dear Friends,
> > > I have good news! Many of you know that due to
> > > severe pain from severe tightness in my legs,
> due to
> > > several car accidents in the 1990s, I have not
> been
> > > able to walk. Last year I was in even worse
> shaape
> > > as I hurt my hip, and it was so tight it hurt to
> get
> > > in the car because the seat in the car was the
> wrong
> > > angle. So, I was in a lot of pain, and
> > > ever-increasing pain medication did little to
> help.
> > > I tried Feldenkrais, Massage, Acupuncture, hot
> tubs,
> > > PT, nothing worked. Xrays finally showed that my
> hip
> > > was so tight that it was pulling everything out
> of
> > > alignment. I was seriously depressed. Then I
> > > remembered the spasticty clinic in Berkeley. I
> was
> > > finally able to get in to be evaluated by the
> PT's,
> > > they couldn't do anything with me because
> everything
> > > caused me so much pain. They recomended I try
> the
> > > ITB pump, aka the Baclofen pump. It has an 87
> > > percent positive response in folks with CP, 95
> > > percent positive response in people with SCI.
> Before
> > > they open you up to put in the
> > >  pump, they test it, by injecting Baclofen into
> the
> > > spine. It worked very well for me, so in
> December
> > > 2006, I had the surgery. And now, three months
> > > later, I am walking with a walker in PT!  After
> I
> > > get more practice walking on different surfaces,
> > > they will give me a walker to take home. On
> > > thursday, I walked about 30 feet...
> > >
> > > So, that is one thing, another thing is I have
> fixed
> > > up my website and have added many new paintings,
> so,
> > > go have a look and let me know what y'all think.
> Of
> > > course, I'd like you to purchase something if
> you
> > > see something you like. My prices are fair,
> remember
> > > that most of the price goes to cafepress who
> provide
> > > the items, print them, ship them, so I usually
> earn
> > > just a couple dollars on most, though not all
> items.
> > > Each design comes on many different items in a
> range
> > > of prices. if you have trouble seeing things,
> press
> > > Control and the Plus symbol on your numeric
> keypad.
> > > this will enlarge the page.  New items I'd like
> to
> > > point out are postage stamps. Yes, these are
> real
> > > U.S. postage stamps with two of my designs on
> them.
> > > Also of note, is my award-winning poem; The
> Cerebral
> > > Palsy Lady.  Also Breast Cancer Awareness
> > > tee-shirts, and anti-RFID real i.d. act tee
> shirts.
> > > If I sell 200 breast cancer tees, I'll donate
> 100.00
> > > to Susan Koman foundation. So, tell all your
> friends
> > > to
> > >  visit my website!
> > > http://www.cafepress.com/tamarmag
> > >
> > > Love,
> > > Tamar
> > >
> > > ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
> > > Tamar Mag Raine
> > > [log in to unmask]
> > > www.cafepress.com/Tamarmag
> > > Lots of new art & designs ~ come and look!
> > > ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
> > >
> > >
> > >
> > > -----------------------
> > >
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> C-PALSY
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> > >
> > >
> >
>
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> > >
> >
> >
> >
> >
> >
> >
> >
>
____________________________________________________________________________________
> > Need Mail bonding?
> > Go to the Yahoo! Mail Q&A for great tips from
> Yahoo! Answers users.
> >
>
http://answers.yahoo.com/dir/?link=list&sid=396546091
> >
> > -----------------------
> >
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> >
> 
> 
> 
> -- 
> 
> 
> Kendall
> 
> An unreasonable man (but my wife says that's
> redundant!)
> 
> The reasonable man adapts himself to the world; the
> unreasonable one
> persists in trying to adapt the world to himself.
> Therefore, all progress
> depends on the unreasonable man.
> 
> -George Bernard Shaw 1856-1950
> 
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> 
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