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Subject:
From:
"Kendall D. Corbett" <[log in to unmask]>
Reply To:
Cerebral Palsy List <[log in to unmask]>
Date:
Thu, 31 Jul 2008 08:38:23 -0700
Content-Type:
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Kat,

I haven't used a "chair cycle" of the type you describe, but I do have a
recumbent stationary bike that works pretty well.  As happened with Mary
Katherine (do you mind if I call you MK?), I also had a stroke at 16 on top
of my CP, which changed my capabilities, but as we age, Janet and I are
seeing physical changes that our parents and aunts and uncles didn't see
until their 60's.  I'm really interested in working with NIDRR to establish
a RERC on aging and disability issues.  WIND (The UCEDD I work for) has a
really strong tie with Wyoming's Geriatric Education Center and UW's School
of Engineering, so we might be the ideal place to get one started.
Re-assessing our capabilities as we age is very important.  About a year and
a half ago, Janet decided that there were tasks that she (we) needed AB help
with, and so got qualified for help with dressing and light housekeeping.
It's been a Godsend for both of us.  My ego is almost to the point that I'll
be willing to accept help with dressing myself, as I'm having mornings when
I'm afraid I'm going to wind up on the floor as I put on shoes and socks.

On Thu, Jul 31, 2008 at 3:00 AM, Kathy <[log in to unmask]> wrote:

> I'm 55 and my capabilities are still changing, too.  It's not just CP but
> also aging and a willingness to keep assessing what you can do and pushing
> yourself just a bit more.  Most of my friends are giong through the same
> thing and they're all AB.
>
> In fact, I've started taking advantage of fitness programs at work to start
> chair yoga and upper-body strength exercising.  I also plan to buy a chair
> cycle so I can exercise my legs - has anyone used one of these?  You can put
> them on a table and also cycle with your hands.
>
> Kat
>
>
> Mary Powers wrote:
>
>> Hello,
>>
>> I can walk but - I tend to have 1 of 2 reactions.  either denial that I
>> have impairments or a pitying 'so that's your problem' attitude.
>>
>> that said, some people have responded positively when I tell them that
>> there is something neurologically wrong.
>>
>> I have CP but I also had issues with a stroke when I was 16, and poor
>> vision, an odd type headache that did not go away, and poor coordination,
>> based on that.  I am currently recovering from that based on better visual
>> and motor therapy, which is based on sensory integration.
>>
>> however that said, I was diagnosed with ataxia before I had the stroke and
>> I'm in the odd position of not knowing what my capabilities are, really. I'm
>> almost 40 and stil figuring that out.
>>
>> take care,
>>
>> Mary Katherine
>>
>>
>> **************************************
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>>
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-- 


Kendall

An unreasonable man (but my wife says that's redundant!)

The reasonable man adapts himself to the world; the unreasonable one
persists in trying to adapt the world to himself. Therefore, all progress
depends on the unreasonable man.

-George Bernard Shaw 1856-1950

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