HI Manuela,
My daughter is a right hemi. She has always been active but she knows her limits. I really laughed one time when one of her friends wanted her to do the impossible - she looked at her and said - Hello Cerebral Palsy Girl here. She is about to be 21 - she rides a bike to her classes, takes yoga and goes to the gym. In elementary school she would try most everything and was running the mile in 9 minutes and 30 seconds. That was pushing it and she ended up with pain and minute muscles tears - so she slowed down and alternated running and walking. It was better. She hasn't had OT or PT in years - frankly just out of my ability to pay for it. She has always been realistic about the CP - and any limitations it really imposes. But she will try hard to come with alternatives. The only sport she ever did was Softball back in elementary school. She did okay.
Trisha
________________________________
From: Cerebral Palsy List on behalf of Manuela Shepherd
Sent: Sun 9/30/2007 11:51 AM
To: [log in to unmask]
Subject: Re: Hello again
Thank you guys!
Can someone tell me about physical activity in your life=3F. Is anybody perf=
roming a sport=3F Are you all going to the OT or PT=3F Does it help=3F
Manuela
-----Urspr=FCngliche Nachricht-----
Von: Cerebral Palsy List <[log in to unmask]>
Gesendet: 30.09.07 04:08:37
An: [log in to unmask]
Betreff: Re: Hello again
How much does your insurance covers for all the medication=3F You can give m=
e a % if you want. Do you pay 100% out of your own pocket for the insuranc=
e or does your job pays for it 100%=3F
Manuela
-----Urspr=FCngliche Nachricht-----
Von: Cerebral Palsy List <[log in to unmask]>
Gesendet: 30.09.07 03:49:32
An: [log in to unmask]
Betreff: Re: Hello again
Yeah, Lyrica either works or it doesn't. At least that's what my doc said=
. Luckily it works for both of us, eh=3F Still a bit pricey, though.
=20
The aneurysm wasn't too bad pain-wise. I was semi-comatose for five days,=
so if it hurt I either didn't feel it or didn't care. The day I got out =
of the hospital we drove 500 miles to Philly for my daughter's college gra=
duation. THAT was an experience! LOL!
=20
Oh yeah, on the way back home we got in a car accident on a bridge exactly=
over the center of the Ohio River. We were rear-ended by a guy from West=
Virginia who was himself rear-ended by a guy from Pennsylvania. The Ohio=
State Highway Patrol and the West Virginia State Police argued over whose=
jurisdiction we were in (neither wanted to write up the accident on their=
turf). Then we had to deal with the insurance companies and the insuranc=
e laws from Ohio, WVa., and PA. We're still involved in that mess. At le=
ast no one was seriously hurt--that's the important thing. Cars can alway=
s be replaced--people can't.
=20
Kyle
=5F=5F=5F=5F=5F=5F=5F=5F=5F=5F=5F=5F=5F=5F=5F=5F=5F=5F=5F=5F=5F=5F=5F=5F=5F=5F=5F=5F=5F=5F=5F=5F
From: Cerebral Palsy List on behalf of ehthiers
Sent: Sat 9/29/2007 8:28 PM
To: [log in to unmask]
Subject: Re: Hello again
I love my Lyrica and find it helps a lot better than cymbalta without the
side effects, I don't have CP nor diabetic neuropathy (still trying to fin=
d
out the reason for my neuropathy). The aneurysm sounds extremely painful=
.
Beth t.
> -----Original Message-----
> From: Cerebral Palsy List [mailto:[log in to unmask]]
> On Behalf Of Cleveland, Kyle E.
> Sent: Friday, September 28, 2007 9:57 PM
> To: [log in to unmask]
> Subject: Re: Hello again
>
> OK, so how's everyone doing CP-wise=3F As for me, I've found
> Botox. Anyo=3D ne else have any experience with this stuff=3F=20
> It's been a godsend for=3D me. I get shot about every 3
> months or so and a heck of a lot of stret=3D ching in between.=20
> I guess we're going to start using some drug called=3D=20
> "Myoblock" next time around. Apparently the body doesn't
> develop the=3D same accomodation to the botulin toxin. I also
> found a kick-butt ortho=3D tist in town that built an
> incredible AFO for me--makes a night and day=3D difference in my gait.
> =3D20
> Last year I had an aneurysm pop somewhere in my gut and came
> pretty clos=3D e to going 'casters up'. The net result was that
> I lost about 30 pounds=3D in the hospital and have managed to
> keep it off. That helps enormously=3D . Every pound you lose
> is one pound less to carry on a battered old fra=3D me.
> =3D20
> I've also found a new med called Lyrica (pregabalin). The
> stuff origina=3D lly was prescribed for folks with diabetic
> nerve pain, but they are disc=3D overing it helps with a host
> of CNS issues. My pain load has dropped=3D remarkably.=20
> Lyrica and Zanaflex (tizanidine) at night are the only two=3D=20
> CP meds I'm taking now. I'm doing better than I have been in years.
> =3D20
> Enough about me, what about everyone else=3F Bring me up to
> date on every=3D thing.
> =3D20
> Kyle
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