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Cerebral Palsy List <[log in to unmask]>
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From:
Tamar Raine <[log in to unmask]>
Date:
Wed, 30 Jul 2008 23:12:56 -0700
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mary,
my capabilities change all the time.  sometimes i can get out of my nightgown myself, other times i need help.  etcetera 

 
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Tamar Mag Raine
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----- Original Message ----
From: Mary Powers <[log in to unmask]>
To: [log in to unmask]
Sent: Wednesday, July 30, 2008 9:53:00 PM
Subject: Re: Dealing with the public if you have CP

Hello,

I can walk but - I tend to have 1 of 2 reactions.  either denial that I 
have impairments or a pitying 'so that's your problem' attitude.

that said, some people have responded positively when I tell them that 
there is something neurologically wrong.

I have CP but I also had issues with a stroke when I was 16, and poor 
vision, an odd type headache that did not go away, and poor 
coordination, based on that.  I am currently recovering from that based 
on better visual and motor therapy, which is based on sensory 
integration.

however that said, I was diagnosed with ataxia before I had the stroke 
and I'm in the odd position of not knowing what my capabilities are, 
really. I'm almost 40 and stil figuring that out.

take care,

Mary Katherine


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