Bettina And All,



I read Geri Jewell's book but, it was a long time ago, I don't
remember at all what it was about.



Kathy










On 6/29/08, Bettina Brown <[log in to unmask]> wrote:
> Geri Jewell, now 51, wrote an autobiography many, many years ago.  I can't remember if she addressed the aging issue then because she was in her 20s-30s when she wrote it.  She now has an official website, but I couldn't find info on her book.  Her website is:
> http://www.gerijewell.com/index.htm
> You might have to do a search on Amazon.com.
>
> Thanks, Bettina - "Crack a smile, its nature's best addictive medicine.  Laughter is like inner jogging".
>
> http://profiles.yahoo.com/techwriter4u2
>
>
>
> ----- Original Message ----
> From: Mary Powers <[log in to unmask]>
> To: [log in to unmask]
> Sent: Sunday, June 29, 2008 7:52:29 PM
> Subject: books on CP, and a doctor question
>
> Hello,
>
> I am interested in books on CP.
>
> I've done some looking and I see plenty of books about children, but not much that acknowledges that we grow up :)
>
> I also see a lot of professional books.? the problem with this is that my type is ataxic, but it's an unusual kind of ataxic.? I was diagnosed as a teenager.? however, as an adult I have had other doctors be skeptical.?
>
> that is b/c I have what looks like normal muscle tone when I am resting and for the first - about two minutes of doing an activity.? and then my muscle strength falls off a cliff.? my muscles are very weak.
>
> I have muscle spasms/tremors, difficulty with a lot of motor activities and etc.? also I feel shaky often.? I get tremors/spasms in my stomach/midsection.? I also have the difficulty with depth perception.? When I was 15, I was told damage to the cerebellum caused this.? I have visual difficulties as well.
>
> I have a very supportive husband and I work part-time.? they are very supportive at work.
>
> the doctors decided that I was basically ataxic, but an unusual variation on it, where I had most of the symptoms but not all of them.? I also have other symptoms like spasticity and etc. at times.
>
>
> the reason I'm saying all this is that I'm almost 40 and am noticing some effects from aging, similar to what I hear other people talking about.? more immobility and etc.
>
> and I would like to do PT and/or OT.
>
>
> so - two questions
>
> 1.? since I have an unusual type of CP, how do I best find a doctor who has an open mind about unusual presentations so I can get good PT/OT recommendations?
>
> I have actually encountered only one skeptical doctor and he was an orthopedist who attributed my problems to being overweight.? I really don't think that's the case b/c of what I have noticed, and what I was told when I was 15.
>
> I've been told that seeing a physiatrist is better than seeing a neurologist.? does that sound like that makes sense?
>
> and
>
> 2) any recommendations for books about CP that are not medical, and are not about children, I would appreciate.? particularly if they are written by someone with CP.
>
>
> thanks
>
>
> Mary Katherine
>
>
>
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>
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-- 
Kathy Jo Pink
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