Kathy Jo,
It sounds like your regular doc isn't taking your pain too seriously. I'd
ask him/her for a referral to a physical medicine doctor. Don't remember if
you're closer to Madison or Dubuque, but there are at least two in either
town. Here's the website for the professional association for physical
medicine/rehabilitation doctors: www.aapmr.com. If it were me or Janet,
I'd go to Madison, as the ones there are affiliated with the medical school,
so they _might_ have more experience with CP. In Wyoming there's one doctor
who's board certified in physical medicine and rehabilitation, and he's in
the same town we are. He's also the one who does pain management, but his
physiatry practice is primarily sports medicine.
On Sat, Mar 29, 2008 at 11:36 AM, Kathy Pink <[log in to unmask]> wrote:
> I am glad this came up on this list! I am 36 (I will be 37 July fifth).
> Over the last month, I have been experiencing physical pain (especially in
> my hips and lower back). I went for my yearly Camp Physical , I brought
> this up to my regular family physician and he said, "That's what you get
> for
> being in a wheelchair most of the time" or something to that effect . as
> I
> write this, I am wondering if this is a side effect of having CP.?
>
>
>
>
>
>
>
>
>
>
>
>
>
> On Fri, Mar 28, 2008 at 7:16 PM, ehthiers <[log in to unmask]> wrote:
>
> > Yeah for mentioning OT. There medical and non medical methods and it
> will
> > depend on your clinic. I remember my internship a gal was going to the
> > pain clinic for nerve blocks that weren't working. What did work was
> > aqua
> > therapy for her complex pain syndrome. What you need is a multifocal
> > management program.
> >
> > Beth t.
> >
> > > -----Original Message-----
> > > From: Cerebral Palsy List [mailto:[log in to unmask]]
> > > On Behalf Of ken barber
> > > Sent: Friday, March 28, 2008 2:12 PM
> > > To: [log in to unmask]
> > > Subject: Re: pain clinics
> > >
> > > because of kidney problems there is little i take in the way
> > > of pain meds. other than tylenol i take nothing for pain.
> > >
> > > --- Heather Beaudry <[log in to unmask]> wrote:
> > >
> > > > Professionals at a good pain clinic do a lot of different things.
> > > > P.T.s and O.T.s can help you with more orthopedically
> > > correct ways of
> > > > doing things so that you are less likely to inadvertently
> > > contribute
> > > > to your pain.
> > > >
> > > > The physicians will often work on medication issues
> > > > -- many people who go to pain clinics with chronic pain are taking
> > > > lots of medications that are no longer effective. Through
> > > charting it
> > > > is possible to get a better idea of pain patterns, which
> > > medications
> > > > (if any) are effective and how to treat with medication.
> > > >
> > > > Psychologists and counselors often work with people at pain
> > > clinics on
> > > > pain management techniques -- mindfulness meditation, pacing,
> > > > refocusing, etc.
> > > >
> > > > Then there are often groups with other people who have
> > > pain. It can
> > > > be really helpful to hear their ideas of how they cope.
> > > >
> > > > Most of the people I know who have gone to pain clinics (I am a
> > > > psychologist) had severe, chronic back and/or neck pain or
> > > migraines.
> > > >
> > > > Hope that helps,
> > > >
> > > > Heather
> > > >
> > > > -------------- Original message
> > > > ----------------------
> > > > From: ken barber <[log in to unmask]>
> > > > > my new doc has suggested a pain clinic for me to handle the pain
> > > > > from the permanent tendinitis in
> > > > my
> > > > > hands and arms. you know the arms and hands that
> > > > could
> > > > > not possibly be injured because i have cp.
> > > > >
> > > > > what does a pain clinic do?
> > > > >
> > > > >
> > > > >
> > > > >
> > > >
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--
Kendall
An unreasonable man (but my wife says that's redundant!)
The reasonable man adapts himself to the world; the unreasonable one
persists in trying to adapt the world to himself. Therefore, all progress
depends on the unreasonable man.
-George Bernard Shaw 1856-1950
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