well kendall, you know everyone is different. with me
after i could not get the baclofen to work, and three
sureries on my hands. when the doc discovered that it
was in the elbows and sholders and then that i'ld
pulled out 2 or 3 dysk in the neck to the point of
herniated them, yes, he said you got to get out of
there.
i still have pain in the arms and hands but not as
bad. and the botox in the neck is helping relieve the
strain there.
a neuro at the emory motion disorder clinic said no
surgery what so ever in the neck, with those muscles
puling in so many directyions i would never recover.
and then the ortho there said he would not touch my
elbows. emory is a nationally know hospital so those
are good doctors.
there was not much more for me to do. i'd have liked
to have been able to work until i was 65.
i can not tell you about janet.
--- "Kendall D. Corbett" <[log in to unmask]>
wrote:
> Ken,
>
> I'd stay as far away from baclofen as I could if I
> reacted to it like that!
>
> With how you describe your tendonitis, it sounds a
> lot like Janet's.
> Did anything, short of retirement, help? If it
> means she should retire,
> I'd better start looking for a job that pays more!
>
>
> On 4/9/07, ken barber <[log in to unmask]> wrote:
> >
> > acutally my doc says i strained my tendons over
> and
> > over and over 8-16 hours a day overcoming the
> dystonic
> > spastisity in my arms and uper trunk just to do my
> job
> > and my tendons just became permanant. you know as
> > young people we were told you just overcome it.
> well i
> > hurt myself overcoming it. especially during those
> > times i was working with jewelery sized tools and
> the
> > tiny screws taking apart computers and rebuilding
> the
> > guts.
> >
> > my side effect was a dizzyiness, heart pounding,
> > almost like a panic attack. i woke judy one night
> > thinking i might be about to have some kind of
> heart
> > failure. looked in the physicians desk guied and
> all
> > that was listed as possible side effects. so i
> have
> > not tried it in any form again.
> >
> >
> >
> > --- "Kendall D. Corbett"
> <[log in to unmask]>
> > wrote:
> >
> > > Ken,
> > >
> > > Janet got a pump about a year ago, and it's
> worked
> > > fairly well for her. She
> > > was getting over-medicated on oral baclofen, but
> the
> > > pump doses work
> > > relatively well. If the oral was causing nausea
> or
> > > other symptoms for
> > > you, ITB might not be the way to go.
> > >
> > > She's also got tendonitis symptoms that sound
> quite
> > > a bit like what you've
> > > described in the past. She hoped the pump would
> > > help some with that, by
> > > reducing the spasticity in her arms, but it
> hasn't.
> > > Have you found anything
> > > that's helped with your tendonitis?
> > >
> > >
> > > On 4/8/07, ken barber <[log in to unmask]>
> wrote:
> > > >
> > > > mag it is great that the baclofen pump worked
> so
> > > well
> > > > for you. i wish i did not get side effects
> with
> > > > baclofen.
> > > >
> > > > --- Tamar Raine <[log in to unmask]> wrote:
> > > >
> > > > > Dear Friends,
> > > > > I have good news! Many of you know that due
> to
> > > > > severe pain from severe tightness in my
> legs,
> > > due to
> > > > > several car accidents in the 1990s, I have
> not
> > > been
> > > > > able to walk. Last year I was in even worse
> > > shaape
> > > > > as I hurt my hip, and it was so tight it
> hurt to
> > > get
> > > > > in the car because the seat in the car was
> the
> > > wrong
> > > > > angle. So, I was in a lot of pain, and
> > > > > ever-increasing pain medication did little
> to
> > > help.
> > > > > I tried Feldenkrais, Massage, Acupuncture,
> hot
> > > tubs,
> > > > > PT, nothing worked. Xrays finally showed
> that my
> > > hip
> > > > > was so tight that it was pulling everything
> out
> > > of
> > > > > alignment. I was seriously depressed. Then I
> > > > > remembered the spasticty clinic in Berkeley.
> I
> > > was
> > > > > finally able to get in to be evaluated by
> the
> > > PT's,
> > > > > they couldn't do anything with me because
> > > everything
> > > > > caused me so much pain. They recomended I
> try
> > > the
> > > > > ITB pump, aka the Baclofen pump. It has an
> 87
> > > > > percent positive response in folks with CP,
> 95
> > > > > percent positive response in people with
> SCI.
> > > Before
> > > > > they open you up to put in the
> > > > > pump, they test it, by injecting Baclofen
> into
> > > the
> > > > > spine. It worked very well for me, so in
> > > December
> > > > > 2006, I had the surgery. And now, three
> months
> > > > > later, I am walking with a walker in PT!
> After
> > > I
> > > > > get more practice walking on different
> surfaces,
> > > > > they will give me a walker to take home. On
> > > > > thursday, I walked about 30 feet...
> > > > >
> > > > > So, that is one thing, another thing is I
> have
> > > fixed
> > > > > up my website and have added many new
> paintings,
> > > so,
> > > > > go have a look and let me know what y'all
> think.
> > > Of
> > > > > course, I'd like you to purchase something
> if
> > > you
> > > > > see something you like. My prices are fair,
> > > remember
> > > > > that most of the price goes to cafepress who
> > > provide
> > > > > the items, print them, ship them, so I
> usually
> > > earn
> > > > > just a couple dollars on most, though not
> all
> > > items.
> > > > > Each design comes on many different items in
> a
> > > range
> > > > > of prices. if you have trouble seeing
> things,
> > > press
> > > > > Control and the Plus symbol on your numeric
> > > keypad.
> > > > > this will enlarge the page. New items I'd
> like
> > > to
> > > > > point out are postage stamps. Yes, these are
> > > real
> > > > > U.S. postage stamps with two of my designs
> on
> > > them.
> > > > > Also of note, is my award-winning poem; The
> > > Cerebral
> > > > > Palsy Lady. Also Breast Cancer Awareness
> > > > > tee-shirts, and anti-RFID real i.d. act tee
> > > shirts.
> > > > > If I sell 200 breast cancer tees, I'll
> donate
> > > 100.00
> > > > > to Susan Koman foundation. So, tell all your
> > > friends
> > > > > to
> > > > > visit my website!
> > > > > http://www.cafepress.com/tamarmag
> > > > >
> > > > > Love,
> > > > > Tamar
>
=== message truncated ===
____________________________________________________________________________________
Sucker-punch spam with award-winning protection.
Try the free Yahoo! Mail Beta.
http://advision.webevents.yahoo.com/mailbeta/features_spam.html
-----------------------
To change your mail settings or leave the C-PALSY list, go here:
http://listserv.icors.org/SCRIPTS/WA-ICORS.EXE?SUBED1=c-palsy
|
