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Subject:
From:
Linda Walker <[log in to unmask]>
Reply To:
Cerebral Palsy List <[log in to unmask]>
Date:
Sat, 2 Sep 2006 08:45:16 -1000
Content-Type:
text/plain
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Hello to everyone,

I have been reading but not writing. I am the grandmother of a great 
person with CP. I have wondered if ibuprofen would help stiffness. 
When I have over done it in the garden and know I'll be stiff the 
next morning I use this method to self medicate. And usually I can 
then move the next day without stiffness. Does this work at all for 
CP? I've often thought of trying it with Case but have never heard of 
it so thought maybe there is a reason why it won't work.

All the best to everyone,

Linda Walker


At 09:43 PM 9/1/2006, you wrote:
>Mary Katherine Powers wrote:
>
> >
> > I had no idea there was anyone diagnosed with CP later in life.  I
> > thought everyone was diagnosed by about age 5 or so.
>
>
>Hi Mary,
>
>About a decade ago I met a young woman in her mid twenties who'd only
>been diagnosed with CP a couple of years before I met her.  Her CP was
>very very mild, but funny thing was, as soon as I saw her walk in the
>door, and before she said she had it, I knew she had CP.  And, very
>oddly - I would never ask a question like this usually - I asked her
>"How long have you been diagnosed with CP?", rather than saying, as I
>normally would, something like, "Oh, you have CP too, like me".  It was
>very strange.  And up to then, I'd had no idea that CP could be
>diagnosed so late.  I'm 32 and was diagnosed at 2 and a half, so that's
>all I knew.
>
>So yes, it is possible to be diagnosed very late.  The person I
>mentioned was stiffer than average in her movements, and I could see a
>slight delay before she did anything or spoke, wouldn't have been picked
>up by anyone not very familiar with CP.
>
>Sounds like you've had a very frustrating time with the medics.  Just
>remember, doc's aren't superhuman, and some times they muck up
>diagnosises.  Before I was dx-ed with CP as a kid, they thought I might
>have brittle bones (didn't break a bone till I was 18 so I have *no*
>idea where they got that from!), and all the standard doom and gloom
>rubbish they talk about premmie babies.
>
>Hope you get a proper answer and useful help from the med. community
>soon. :-)
>
>Rayna - spastic CP from Perth, Australia, working in non profit advocacy
>(for the info of those of you who've joined/rejoined the list since I
>posted last.  And to clear up possible confusion about my name for those
>who don't know me, I'm female. :-) )
>
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