Phil,
Thank you for the update on Amber.  I am grateful they can treat her and 
with the Lord's help we know it will be successful.  Please tell Wendy that 
I am praying for them.
Praise His Holy Name!
Virgie and Hoshi
----- Original Message ----- 
From: "Phil Scovell" <[log in to unmask]>
To: <[log in to unmask]>
Sent: Wednesday, May 24, 2006 1:09 PM
Subject: Fw: Amber's Diagnosis


> Here is the latest on my nephew's little girl.  His wife, Wendy, and Amber
> are here in Denver right now so they are getting the very best of care.
>
> Phil.
>
>
>
> ----- Original Message ----- 
> From: "Dave & Wendy Adamson" <[log in to unmask]>
> To: "Phil Scovell" <[log in to unmask]>
> Cc: ""Melanie Acevedo"" <[log in to unmask]>; ""Megan Hendricks""
> <[log in to unmask]>; ""Matt Thompson"" <[log in to unmask]>; 
> ""Matt
> Fries"" <[log in to unmask]>; ""Matt & Nina Whale""
> <[log in to unmask]>; ""Mateen Elass"" <[log in to unmask]>;
> ""Mary Davis"" <[log in to unmask]>; <[log in to unmask]>; ""Marla 
> Moody""
> <[log in to unmask]>; ""Mark Hunt"" <[log in to unmask]>; ""Mark and Vicki
> Zimmer"" <[log in to unmask]>; ""Mark & Denise Carruthers""
> <[log in to unmask]>; ""Mark & Becky Krein"" <[log in to unmask]>
> Sent: Wednesday, May 24, 2006 10:15 AM
> Subject: Amber's Diagnosis
>
>
>    On Tuesday, May 23rd, Amber went to the Pediatric Neurologist at
> Children's hospital.  The nurse was surprised that Amber got an 
> appointment
> with the doctor because her schedule is so full.  She said that it is very
> difficult for new patients to get an appointment with the doctor.  PTL, 
> the
> Lord got us through.  Apparently, there are only three Pediatric
> Neurologists in Colorado and Amber's appointment was with one of the 
> three.
>    The doctor said that Amber has Rolandic Epilepsy.  She had all of
> Amber's MRI, EEG and blood results from Almaty and concluded that she has
> Children's Epilepsy.  This is good, because it can be treated with
> medication, Carbatrol, and the hope is that she will grow out of the
> epilepsy in a couple years.  If you wish to learn more, you can find it
> on-line at www.epilepsy.org and
> http://www.epilepsy.org/Visitors/Centre/Brochuresforchapters.cfm.
>
> Prayer:
> 1. Wisdom about the medication; to put Amber on Carbatrol or not.
> 2. If we do, pray that the medicine is adjusted correctly and in the time
> frame of their return plane tickets.
> 3. If she takes Carbatrol, pray that we could get the medication in
> Kazakstan.
>
> Praise:
> 1. Amber got to see an exellent pediatric neurologist.
>
> Here is a summary of Wendy's messages:
>
> "They agree with the Norwegian doctor that the cyst is nothing to worry
> about.  They recommend we do a follow up MRT in a year.  The quality of 
> the
> MRT in Kazakstan was fine and they can get it via email and can review it
> then.  They said these kind of cysts are very common and more often than 
> not
> stay the same size.
>  Their initial thoughts were that she's having Simple and/or Complex
> Partial seizures.  They also think it's Benign Rolandic Epilepsy.
> WWW.epilepsy.org and www.epilepsyfoundation.org had info on this and on 
> the
> medicine she is recommending called Carbatrol.  Nearly all kids with this
> will grow out of it.  We can get the blood levels check in 3 months and
> again in 6 months in Kazakstan."
>
>  "The doctor called and said the EEG shows it is indeed Rolandic
> Epilepsy...If we start the meds on Thrusday then Amber will have a blood
> test on June 7th...If all the levels are fine we are set to go.  If we 
> need
> to adjust it again there's a slight possibility we'll need a bit more time
> ( few more days) to  check her blood again...She seemed to think 200mgs
> would be enough.  It's only if we would need to go up to 300mgs that we'd
> run into a time crunch with the departure date (our purchased round trip
> airline tickets are limited to one month)."
>
>
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