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I need to thank all for the kind responses that I received.  It is so nice to know that my son is not the only one and I so appreciate the supportive words, direction to take and suggestions.  I also appreciated the personal accounts.  The following is a summary and applies to both girls and boys, unless stated otherwise.

The type of physician recommended was a pediatric endocrinologist or an endocrinologist.  

Many suggested to wait and let the diet take over.  It was felt by many that my son was delayed with a recent diagnosis of Celiac Disease.  

Requesting psychological help was encouraged.  Also empowering my child to be active in his diet and any treatment decisions is very important.

A suggestion of keeping your own growth chart for height and weight was made in order to see if your child stays on the chart, levels off, etc.  

Encouraging sports that do not require size and strength such as swimming, golf, baseball (a nice small strike zone!) as well as other scholastic opportunities at the school.

Keep track of calories to make sure that he is consuming enough.

It was suggested that he could be cheating on his diet.

Several that wrote reported that their child had a bone age of 2-3 years behind.  It is important to know that bone age due to the window of opportunity for growth.  Once a certain bone age is achieved, no more growth will take place.  Several with Celiac disease reported growing in their late teens and even at 20 years of age.  (This was specific for boys.)  Girls did continue to grow later in their teens as well, depending on interventions.

Others strongly encouraged assertive/aggressive action due to it starting to affect him psychologically.  This included bone age, testosterone levels and possibly for the growth hormone.  The growth hormone test is not a simple test.  It takes approximately 4 hours over 2 days.  I was glad that one member let me know this.  Another stated that often Celiac Disease can be an excuse for not testing for hormone problems.  A couple stated that human growth hormone is expensive and may not be covered by insurance.  

Again, I thank you for all your personal stories.  We will be visiting my son's doctor armed with good information and examples.  

Carolee





 		
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