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Friends,
Since the low oxalate diet was mentioned recently, I have a question.
Because of interstitial cystitis, I've been on a low oxalate diet for about
10 years and it is very beneficial for that problem. I suspected celiac
some years back, but didn't actually get the proper diagnosis until 2 1/2
years ago (8 years & 10 doctors later). I had been on a GF diet for several
years before, but had a couple of infractions that I finally found and
cleared. I was down to 111 pounds (I'm 5'7"). I began to gain weight, and
although not perfect, felt better overall.
Many have said it takes several years and I realize that, but I seem to be
getting worse. For a while, I seemed to be able to eat a few fruits w/o
allergic reactions. At present, I cannot tolerate gluten, soy, corn, sugar,
dairy, eggs, potato, tomato and of course, anything high oxalate which means
no beans/sweet potato/spinach/beet, etc. I eat apples and pears; anything
else gives me oral allergy syndrome unless it is cooked; i.e. cooked peaches
and not fresh. My diet consists only of fresh meat, fresh veggies and
fruits. I eat rice in very small amounts, as starches stall my digestion
and I end up losing more weight.
I've tried a cabinet full of "remedies" and at present, do not tolerate
anything herbal; homeopathic remedies make me ache, as did the last 2-3
probiotics I tried. I supplement potassium and zinc.
To you who have the oxalate problem, is there any medication that is
helpful? Have you ever been to a urologist for this problem, and was it
helpful?
Recently, I wanted to try using fresh juices and had several glasses of
carrot/apple. I ended up with severe jaw pain, and over the weekend, ate a
salad with fresh carrot/apple/kiwi and had the worst bout of jaw pain I've
ever experienced. Carrots are medium oxalate so I assume juicing delivers
too much oxalate.
Constant burning pain & fatigue from oxalate is just hard to tolerate.
Until recently, I was able to eat a few nuts, but my pain has been
increasing so I'm trying to back off. I'm very discouraged. My body is
extremely touchy and there is seldom a day w/o pain. I find it extremely
difficult to give up more foods.
Suggestion? Comments? I'm ready to visit my internist for a checkup, but
would like some new info before I do. I end up educating her more than she
does me.
Joyce in Alabama
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