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From:
Linda Walker <[log in to unmask]>
Reply To:
Cerebral Palsy List <[log in to unmask]>
Date:
Tue, 25 Sep 2007 11:01:26 -1000
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I don't know if anyone has heard of this Thomas Hanna work but it is 
very gentle and he was trained by Feldenkreis. The best thing about 
it is you can buy the book and some tapes to help you go through the 
exercises so it is not as expensive as some treatments. Of course if 
you could find a practitioner that would be great. There are more in 
the Bay Area than anywhere. You would have to have control of some of 
your movements to be able to do it but it is done mostly laying on 
your back. You can look him up on the internet. I know about it 
because a friend of mine took his training and then he died so he 
passed it on to a few people. I was looking for things to help Case 
and found a practitioner near us. Wonderful.

At 09:20 AM 9/25/2007, you wrote:
>http://www.chabad.org/theJewishWoman/article.htm/aid/569414/jewish/Disabi=
>lity-What-Disability.html
>
>Printed from Chabad.org Print this Page=20
>=20
>=20
>Disability? What Disability?
>Overcoming the Reality, Stigma and Pain
>
>By Jerry Farris
>=20
>=20
>Someone once said: "Really lucky people do not necessarily have the best =
>of everything; they are the ones who make the most of whatever life =
>throws at them." In my case, it's more like, disabled people do not =
>necessarily have the best in life; they simply take what life has thrown =
>at them and make the most of it.
>
>I can't speak for everyone who has a disability, for we are all =
>different as we are diverse. My disability may not be as severe or =
>disabling as someone else's, but it has had a profound impact on my life =
>and career.=20
>
>I suddenly found myself on the floor in incredibly unbearable painI have =
>a rare neuromuscular disease that is not supposed to be sudden in its =
>appearance, nor disabling or hereditary. Mine, it turned out, was all =
>three and then some! Chronic Inflammatory Demyleanating Polyneuropathy =
>or CIDP, is generally one of those slightly aggravating diseases that =
>doesn't stop you in your tracks, and you go about your life like other =
>"normal" people with occasional muscle discomfort and perhaps balance =
>problems at times. Not so with me (who likes to be like everyone else, =
>anyway?)!
>
>I awoke one morning at 5 o'clock to go to my nursing job. When I tried =
>to stand up to go shower, I suddenly found myself on the floor in =
>incredibly unbearable pain =E2=80=93 all over! I somehow managed to drag =
>myself into the bathroom and pulled myself up.
>
>I tried to yell and wake my daughter who was sleeping upstairs, but =
>found even my voice was barely audible. So I banged on the pipes and =
>radiator until she came downstairs.
>
>So began my battle with what was initially a "fever of unknown etiology =
>with partial paralysis." Years in and out of hospitals with muscle =
>spasms, muscle pain, grossly abnormal (yet otherwise unexplainable) =
>muscle tests followed. Still, nobody had an answer as to what was wrong.
>
>After the initial three-month stay in the hospital and rehabilitation, I =
>went home in a wheelchair. I was told I would never walk again; but I =
>decided I would, and painfully worked to that end. After another few =
>months I was on a cane and returned to work as a nursing supervisor.
>
>But as fate would have it, I could not continue in the nursing career I =
>had worked at for nearly 30 years. I developed diabetes and severe =
>foot-drop and was told I had become a liability; I was forced to retire. =
>The muscle pain and partial paralysis of my lower limbs increased and I =
>was once again in a wheelchair. Upset with my lot, I became active in =
>volunteering at the Veterans Administration Out-Patient Clinic in my =
>town, and worked in the Physical Therapy Department for six years. I =
>didn't do much, just made appointments and became good friends with the =
>therapist there. She and I began a therapy program to try and improve my =
>balance and strengthen my leg muscles.=20
>
>Finally, in 1999, I came out of the wheelchair and walked with arm =
>crutches. I still used the chair or a scooter for long distances, but =
>around the house and for short jaunts, the crutches became my support. I =
>even took a trip to Israel =E2=80=93 the fulfillment of a lifelong =
>dream!
>
>But I digress. I really missed nursing and working at the VA was nice, =
>but not really fulfilling. So I was talking with a friend one day who =
>thought I had a great sense of humor. She introduced me to a friend of =
>hers who publishes a magazine just for the disabled community. After =
>talking a few times, we decided I would try writing a humor column about =
>living with a disability. So "On These Wheels" was born. The first =
>column was written in 1998, and today I submitted my last column (the =
>magazine has been sold).
>
>I began to realize that here really is healing in humorWriting about my =
>experiences as a disabled person gave me the ability to laugh at myself, =
>and help others to laugh also. That sense of humor made it easier when =
>people would stare at me when I fell. I would simply look up and say =
>something like, "Hi! Did you know there's a crack in this sidewalk =
>=E2=80=93 and I just found it?!!" Laughing when you have fallen and =
>truly "can't get up" is never easy, but it keeps you from getting =
>depressed about your situation.
>
>Once I began to do that, I began to realize that there really is healing =
>in humor. Readers began to call the office and say they were laughing at =
>things that they never before thought as funny, and doctors' offices and =
>one medical school would call asking for copies to give their patients =
>and students. For the first time in years, I felt like I had found a new =
>lease on life.
>
>Of course, there was the normal day-to-day living to contend with, and I =
>have lived alone since my divorce in 1979; and I didn't want a live-in =
>helper either. That meant learning initially how to do things while in a =
>wheelchair in a non-wheelchair apartment =E2=80=93 t'wasn't easy!!!
>
>My children say the word "stubborn" doesn't even begin to define my =
>determination. I wouldn't let anyone help me do anything for a long =
>while. If I couldn't do it, it didn't get done. Finally, my friend, the =
>therapist, convinced me to let her come to my house and see what I =
>needed help with. Together we either found aides to make things easier =
>(like knives with fat handles or a board to help me slide from the =
>wheelchair onto the bed). Then we worked on things like making a bed or =
>running the vacuum. I believe re-learning to do what I had been doing =
>for years was the hardest thing of all.
>
>I became determined to get better. Once on the crutches, I still =
>exercised my leg muscles to get stronger. Finally, after a couple of =
>years, I was able to walk around the house by holding onto furniture or =
>walls and counters. I got brave at times and would walk a couple of =
>steps without holding onto anything. Sometimes I made it, sometimes I =
>would fall or nearly fall. But I kept "practicing"; after all, babies =
>don't walk without falling the first few times either!
>
>I still had spasms in my legs and after a few years, my arm muscles and =
>even chest and back muscles at times, would spasm. It seemed the disease =
>was getting worse.=20
>
>It was one of the rarest forms of that diseaseI was sent to a =
>neurologist who specialized in rare neuromuscular diseases. After an EMG =
>(muscle test) and muscle biopsies and other tests, it was determined I =
>had the CIDP, and after taking a detailed history including that of my =
>family (and of course, my daughters), she informed me that it was one of =
>the rarest forms of that disease, and is not curable. Only the symptoms =
>(like the spasms) can be treated. She said my form was very much like =
>having Multiple Sclerosis in the sense that there would be remissions =
>and exasperations (gets better and worse); and if I went into remission, =
>to enjoy it while it lasted.
>
>Finally! The disease had a name. Then I found out most people only know =
>about the mild form of the disease and demanded to know why I was on =
>crutches and not walking without them! OY!!!! Talk about frustration!!! =
>Having to explain to others made me wonder why no one knew about the =
>rarer side of the disease. So I investigated and found that there are so =
>few patients with the rarer form, that there is no research being done. =
>So, like MS many years ago, those of us with this form of CIDP sit alone =
>with few sympathizers.=20
>
>I have little self-pity. I refuse to pity myself. I never allowed others =
>to treat me with pity either. Perhaps that is why I have done so well =
>with my disability. I continued to exercise; going to the gym and =
>working out on a balance ball (with a trainer who volunteered to help) =
>and on weight machines. I even dragged myself onto a bicycle there and =
>painfully pushed and pulled on those pedals until I make the wheel go =
>'round! I didn't perspire, I sweated =E2=80=93 bullets of sweat! I would =
>leave that gym on my crutches looking like I jumped into the pool fully =
>clothed. I went back three days a week for some four years. I never =
>stopped.
>
>I bought a house in Texas (where I'm at now) and began to take a one =
>mile walk every day, crutches and all. Somewhere around October of 2006, =
>I noticed my balance was better and my legs didn't hurt quite as much. I =
>started walking with a cane for short distances, and used the crutches =
>for the walks. Finally, in April, I went to the cane full time!
>
>The legs were hurting less, and my arms were feeling better as well. By =
>June, the majority of my symptoms were gone or fading fast. I was in =
>full remission, Thank G=E2=80=91d!!! I drove my car to Pennsylvania at =
>the end of June and drove back in July with my grandson.=20
>
>I am still in remission, but my legs are beginning to hurt a bit again, =
>and the spasms have returned. But I am not going to weep if this old =
>disease returns. I have enjoyed my freedom, and look forward to another =
>remission, should I be so blessed. So far, I have not had to return to =
>my cane or crutches. It takes me longer to walk my mile, and I tire a =
>lot easier, but I am determined.
>
>I have not had to return to my cane or crutchesG=E2=80=91d has been good =
>to me. I have had great doctors, wonderful friends, and lots of fun. I =
>truly believe we are not given more than we can handle in this life. =
>Rather, G=E2=80=91d entrusts us with these obstacles so we can learn to =
>overcome them and help others. Overcoming, I have discovered, does not =
>necessarily mean getting well, but means making the most of it; doing =
>your best and not losing faith.
>
>I believe I have helped others through my humor column and by example. =
>One thing definitely got better though, my faith. It is stronger and I =
>am more determined to keep learning more. After all, if I can make it =
>through this disease, I can do anything, G=E2=80=91d willing.
>=20
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>
>   =20
>  By Jerry Farris   More articles...  |  =20
>=20
>Jerry Ferris served in the US Air Force and on the Battle Staff in the =
>Block House with Generals Whitehouse and Moore. She is now the Commander =
>of the JWV (Jewish War Veterans of the USA). She is a writer of a humor =
>column for the Disabled Dealer Magazine in which she discusses the =
>struggles of living with a physical disability. Most importantly, Jerry =
>is the proud mother of twin girls and three grandchildren.
>=20
>
>
>The content on this page is copyrighted by the author, publisher and/or =
>Chabad.org, and is produced by Chabad.org. If you enjoyed this article, =
>we encourage you to distribute it further, provided that you comply with =
>the copyright policy.  =20
>   =20
>=20
>
>=20
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>
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>In everlasting memory of Chabad.org's founder, Rabbi Yosef Y. Kazen=20
>=C2=A9 2001-2007 Chabad-Lubavitch Media Center
>=20
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