Hi Kyle,
 
  Amber seems to be doing fine. 
 
 Okay - what an exciting time you had. Glad you made thru.
 
                                      Trisha

________________________________

From: Cerebral Palsy List on behalf of Cleveland, Kyle E.
Sent: Fri 9/28/2007 9:56 PM
To: [log in to unmask]
Subject: Re: Hello again



OK, so how's everyone doing CP-wise?  As for me, I've found Botox.  Anyo=
ne else have any experience with this stuff?  It's been a godsend for=
 me.  I get shot about every 3 months or so and a heck of a lot of stret=
ching in between.  I guess we're going to start using some drug called=
 "Myoblock" next time around.  Apparently the body doesn't develop the=
 same accomodation to the botulin toxin.  I also found a kick-butt ortho=
tist in town that built an incredible AFO for me--makes a night and day=
 difference in my gait.
=20
Last year I had an aneurysm pop somewhere in my gut and came pretty clos=
e to going 'casters up'. The net result was that I lost about 30 pounds=
 in the hospital and have managed to keep it off.  That helps enormously=
.  Every pound you lose is one pound less to carry on a battered old fra=
me.
=20
I've also found a new med called Lyrica (pregabalin).  The stuff origina=
lly was prescribed for folks with diabetic nerve pain, but they are disc=
overing it helps with a host of CNS issues.  My pain load has dropped=
 remarkably.  Lyrica and Zanaflex (tizanidine) at night are the only two=
 CP meds I'm taking now.  I'm doing better than I have been in years.
=20
Enough about me, what about everyone else?  Bring me up to date on every=
thing.
=20
Kyle

________________________________


---- Original message ----
>Date: Fri, 28 Sep 2007 15:02:18 -0700
>From: ken barber <[log in to unmask]>=20
>Subject: Re: Hello again=20
>To: [log in to unmask]
>
>we occasionally talk about cp if we have to.


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