One of the reasons I don't post often although I read the
list is because I don't have cp and I don't want to offend anyone. I
love the list and think it's a great group of people. I have the same
politics as most of you. I don't agree with the Republicans on the
list for sure. People are outspoken on this list, one of the things I
like the best. Our government needs to take care of the aging, infirm, etc.
I know of Lynette's work and she is doing as much as she can
to improve the quality of life for people with physical challenges
(Is that appropriate language, I don't know?). At any rate the
organization she works for is attempting to get more things covered
by insurance and this can only help.
Maybe a discussion of useful language and terminology is in order..
Talk about offensive - a woman on the street saw Case
walking and gave him a dollar asking what happened to him. He just
looks at her and says I have cp and I was born this way. He is too
young to be offended by that but I was.
All the best,
Linda
At 03:51 PM 3/13/2006, you wrote:
>Thanks, Kendall, for amplifying what I was trying to say. I can see
>the need for such sigs on a parents' list, but here, where most of us
>are the CPs, I feel it can be a bit degrading. I hate having a label
>slapped on me, and I think such sigs aren't really appropriate here.
>I see it rather like being in hospital and hearing a doctor refer to
>you as "the broken leg in Room Four-oh-five." (and yes, that did
>happen to me, and I was most annoyed at the time!).
>
>Now, that is not to say that I'm going to make a rule and enforce it;
>that'd be silly. I'm just voicing my opinion.
>
>Kat
>
>On 13 Mar 2006, at 14:28, Kendall David Corbett wrote:
>
> > I belong to another list for people with hydrocephalus, and there's a
> > mix of people with the condition and parents of kids with hydro, and
> > most people include a brief descriptor of why they're on the list in
> > their siglines. I think it's kind of nice, because as new people
> > join,
> > it's kind of like a built in introduction to them. As folks stay
> > on the
> > list, they get to know us as individuals, and the sigline
> > descriptor is
> > not as necessary.
> >
> > I see your point though, Kat; it's kind of like people are still
> > meeting
> > our (or a child's) disability first. I just reread my sigline for
> > C-Palsy, and it doesn't mention Janet's or my CP at all.
> >
> > Kendall
> >
> > An unreasonable man (but my wife says that's redundant!)
> >
> > The reasonable man adapts himself to the world; the unreasonable one
> > persists in trying to adapt the world to himself. Therefore, all
> > progress depends on the unreasonable man.
> >
> > -George Bernard Shaw 1856-1950
> >
> > -----Original Message-----
> > From: [log in to unmask] [mailto:[log in to unmask]]
> > Sent: Monday, March 13, 2006 11:59 AM
> > To: [log in to unmask]
> > Subject: Re: New to list - intensive suit therapy - hand surgery?
> >
> > What kind of surgery?
> >
> > And as an aside, what's with the labels all the parents of CPs put in
> > their
> > sigs? I know y'all have your sigs on the parents' lists, but
> > frankly I
> > find those a wee bit offensive. Just my tuppence.
> >
> > Kat
> >
> > Original Message:
> > -----------------
> > From: lynette smilelaughgiggle [log in to unmask]
> > Date: Mon, 13 Mar 2006 12:44:03 -0600
> > To: [log in to unmask]
> > Subject: Re: New to list - intensive suit therapy - hand surgery?
> >
> >
> > Hi All,
> >
> > My son has upper body spasticity and we are looking at surgery on his
> > hands.
> > Has anyone experienced this with their child? Cody has a baclofen
> > pump,
> > got us through puberty....still a never ending battle.
> >
> > Blessings,
> > Lynette LaScala, mom to Cody (post near drowning,CP)
> >
> >
> > --------------------------------------------------------------------
> > mail2web - Check your email from the web at
> > http://mail2web.com/ .
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