DEAR MR. CORBETT,
DO YOU KNOW WHERE SPECIAL OLYMPICS FOR THE PHYSICALLY DISABLED IF YOU DON'T KNOW YOU KNOW WHO DOSE?
THANK YOU,
STEVE FILLINICH
Kendall David Corbett <[log in to unmask]> wrote:
Janet had surgery on the 3rd for a Baclofen pump; it's only been 10
days, and she hasn't reached her final dosage level yet, but it appears
to be having a noticeable positive impact on both her spasticity and
dystonia. We found a great doctor in Colorado Springs, who'd done his
residency and fellowship at the two places in the country that have
published the most research on Baclofen pumps in people with CP,
particularly adults.
I belong to another list for people with hydrocephalus, and there's a
mix of people with the condition and parents of kids with hydro, and
most people include a brief descriptor of why they're on the list in
their siglines. I think it's kind of nice, because as new people join,
it's kind of like a built in introduction to them. As folks stay on the
list, they get to know us as individuals, and the sigline descriptor is
not as necessary.
I see your point though, Kat; it's kind of like people are still meeting
our (or a child's) disability first. I just reread my sigline for
C-Palsy, and it doesn't mention Janet's or my CP at all.
Kendall=20
An unreasonable man (but my wife says that's redundant!)
The reasonable man adapts himself to the world; the unreasonable one
persists in trying to adapt the world to himself. Therefore, all
progress depends on the unreasonable man.
-George Bernard Shaw 1856-1950
-----Original Message-----
From: [log in to unmask] [mailto:[log in to unmask]]=20
Sent: Monday, March 13, 2006 11:59 AM
To: [log in to unmask]
Subject: Re: New to list - intensive suit therapy - hand surgery?
What kind of surgery?
And as an aside, what's with the labels all the parents of CPs put in
their
sigs? I know y'all have your sigs on the parents' lists, but frankly I
find those a wee bit offensive. Just my tuppence.
Kat
Original Message:
-----------------
From: lynette smilelaughgiggle [log in to unmask]
Date: Mon, 13 Mar 2006 12:44:03 -0600
To: [log in to unmask]
Subject: Re: New to list - intensive suit therapy - hand surgery?
Hi All,
My son has upper body spasticity and we are looking at surgery on his
hands.=20
Has anyone experienced this with their child? Cody has a baclofen
pump,=20
got us through puberty....still a never ending battle.
Blessings,
Lynette LaScala, mom to Cody (post near drowning,CP)=20
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