Kendall Corbert,

Kendall David Corbett wrote:

> KJ,
>
>>> Are Jerky Movements a characteristic of all cases of Cerebral Palsy?
>
>                         No, but they are of some types of CP, and as
>                         some of us have seen, they can become more
>                         frequent or pronounced as we get older.
>
>>> I wanted an assessment for somewhere else, my caseworker said okay and
>
>>> stop going to Cornerstone.
>
>                         Why did your caseworker say to stop going to
>                         Cornerstone, when you asked about an
>                         assessment for someplace else?
>
> Because she thought it would cost to have the assessment done. (I
> found out it is free to have assessment done after the meeting.) The
> place that I want an assessment done costs double what Cornerstone costs.
>


>>>come the first of the next year, you will be kicked out of the house and
>
>>>be at Cornerstone permanently and lose your guardianship.
>
>                         Are you your own guardian now, or are your
>                         parents your guardian?
>
> Yes, I am my own gaurdian.
>


>>>our agency which has a personal care services department - unlike other
>
>>>ILC's - only offers that service in the La Crosse area.
>
>                         Have you considered the possibility of moving
>                         to LaCrosse?
>
>                         No!
>



KJ










>                         You had a lot of good questions for your
>                         caseworker; I'd be interested in the answers
>                         to more of those questions.
>
>                         Sorry to hear about your dad's accident. Janet
>                         got a compression fracture of a vertebra, so
>                         I've seen how painful that can be. Luckily,
>                         most people recover from them completely.
>                         Janet did.
>
>                         Glad to hear that your grandmother's doing better.
>
> Kendall Corbett
>
> Married to Janet for 8 wonderful years on July 26th - a week from
> tomorrow [gulp!]
>
> (We got married on the 7th anniversary of the ADA - Lucky 7, and all
> that!).
>
> An unreasonable man (but my wife says that's redundant!)
>
> The reasonable man adapts himself to the world; the unreasonable one
> persists in trying to adapt the world to himself. Therefore, all
> progress depends on the unreasonable man.
>
> -George Bernard Shaw 1856-1950
>
>
> -----Original Message-----
> From: Kathy Jo Pink [mailto:[log in to unmask]]
> Sent: Sunday, July 17, 2005 10:16 AM
> To: [log in to unmask]
> Subject: Re: I'm Back
>
> mag, Mag, MAG,
>
>
>
> NO, I DON'T WANT TO STOP GOING TO CORNERSTONE. (unless I find something
>
> to do that is different) i DON'T WANT MY PARENTS TO KICK ME OUT . If I
>
> was to stop going to Cornerstone, come January first, 2006, I will be at
>
> Cornerstone all of the time and lose my guardianship. No, they don't
>
> work for Cornerstone or own it. I go to Cornerstone just so they can
>
> have a break.
>
>
>
> Kathy Jo
>
>
>
>
>
>
>
>
>
> Magenta Raine wrote:
>
>>Kathy Jo,
>
>>So, stop going to cornerstone! Let your parents kick you out. You want to
>
>>be on your own anyway... Do they own cornerstone? Do they work for
>
>>Cornerstone? It sure sounds like your parents have a financial stake in
>
>>keeping you either at home, or at Cornerstone. Why else would they be so
>
>>mad about you leaving the day program? They have no right to hold you
> back,
>
>>so, don't let them manipulate you.
>
>>
>
>>Mag
>
>>
>
>>~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
>
>>[log in to unmask]
>
>>How can we expect new results if we do what we've always done?
>
>>War is outdated for the 21st century!
>
>>
>
>>
>
>>
>
>>
>
>>>[Original Message]
>
>>>From: Kathy Jo Pink <[log in to unmask]>
>
>>>To: <[log in to unmask]>
>
>>>Date: 7/16/2005 3:01:03 PM
>
>>>Subject: I'm Back
>
>>>
>
>>>Hello Everybody,
>
>>>
>
>>>
>
>>>
>
>>>For those who are new or don't remember me. My name is Kathy Jo Pink . I
>
>>>am a thirty -four year old born with Cerebral Palsy and because of this
>
>>>I need help eating, going to the bathroom, brushing my teeth, taking a
>
>>>bath (or a shower), washing my hair, shaving , cutting my nails,
>
>>>dressing, brushing my hair, etc. Basically I need total care much like
>
>>>an infant.
>
>>>
>
>>>
>
>>>
>
>>>I left C-PALSY because I went to an Easter Seals Camp in June. I will be
>
>>>leaving the list in a month again to go to Camp Courageous of Iowa.
>
>>>
>
>>>Are JerkyMovements a characteristic of all cases of Cerebral Palsy?
>
>>>
>
>>>I am stillfighting with Independent Living. Last November, I agreed to
>
>>>go to Cornerstone one day a week (just for Dayservice). That was a BIG
>
>>>mistake . I said yes because My Mom wanted it and wanted a break and
>
>>>Cornerstone was building on...well, about a month ago, when I wanted an
>
>>>assessment for somewhere else, my caseworker said okay and stop going to
>
>>>Cornerstone. My parents said (after my caseworker left) if you stop
>
>>>going to Cornerstone , once a week, come the first of the next year, you
>
>>>will be kicked out of the house and be at Cornerstone permanently and
>
>>>lose your guardianship. I have been looking in to another options . My
>
>>>Independent Living Specialist says , "
>
>>>You are correct, ILR is your local independent living center. However,
>
>>>our agency which has a personal care services department - unlike other
>
>>>ILC's - only offers that service in the La Crosse area. One of the
>
>>>things we do is to help people locate other options for personal care
>
>>>services or living options. My personal preference is that if a person
>
>>>has a county case worker, that case worker should be doing that service.
>
>>>If your case worker needs more resources to help you, I'd be happy to
>
>>>help in any way I can. But like I said, I prefer you work with your case
>
>>>worker - She is there to help you. If your case worker is unwilling to
>
>>>help you, you can let me know and I can assist you with advocating or
>
>>>helping you find services.
>
>>>Hope your search is going well. Let me know if you or your case worker
>
>>>need help." and
>
>>>
>
>>>however, what your case manage presents may be the only
>
>>>options available in your area and for your funding source. If you are
>
>>>not satisfied, let her know and ask why those are the only options. The
>
>>>area you live in does not have a lot of options to begin with, so you
>
>>>may not have much to choose from.Yesterday, I wrote a letter to my
>
>>>
>
>>>
>
>>caseworker, I said As you know, I’m not completely satisfied with
>
>>
>
>>
>
>>>Cornerstone. Some of the things I like
>
>>>about it are the staff and
>
>>>drivers, some of the outings and some
>
>>>of the afternoon activities . . Some of the reasons that I don’t like
>
>>>
>
>>>
>
>>are
>
>>
>
>>
>
>>>the morning programming, I am not given a choice what I want to do when
>
>>>
>
>>>
>
>>I’m
>
>>
>
>>
>
>>>there (at dayservice), I don’t like some of the the other clients , I
>
>>>
>
>>>
>
>>don’t
>
>>
>
>>
>
>>>like going to bed early the night before and getting up early. Is
>
>>>
>
>>>
>
>>Cornerstone my only option for Dayservice
>
>>
>
>>
>
>>>and Respite ? If so, why? If it’s my only option, I am going to get
>
>>>somebody else involved . How is Room
>
>>>and Board paid for Residential Services?
>
>>>The REM assessment is free. Knowing that, can I have a REM Assessment
>
>>>done and still continue with Cornerstone?
>
>>>Until I find something else that I like and can afford , I will be
>
>>>willing to continue with Cornerstone.
>
>>>Does Unified have a billing number that could be used for personal care?
>
>>>
>
>>>
>
>>>
>
>>>
>
>>>
>
>>>
>
>>>On the Fourth of July, my Dad was out spraying in the P.M. in the back
>
>>>
>
>>>pasture. He had the 4-wheeler and a load of spray spraying. He was
>
>>>
>
>>>going along the ditch line and the 4-wheeler and load tipped over on top
>
>>>
>
>>>of him. He laid for about 20 minutes before he could move and crawled
>
>>>
>
>>>out. He was in so much pain when he finally got back to the house. He
>
>>>
>
>>>said I have to go in. They x-rayed his back and he has a compression
>
>>>
>
>>>fracture. He compressed the vertebrae. He is in alot of pain. They
>
>>>
>
>>>gave him four shots and pain pills. The doctor advised him to stay in
>
>>>
>
>>>the hospital over night but he wouldn't. He must be very careful and
>
>>>
>
>>>any change in his condition he must get to the hospital immediately. He
>
>>>
>
>>>
>
>>has a brace. If the
>
>>
>
>>
>
>>>pain doean't have of let up, he would have gone to Dubuque (Iowa) to
>
>>>see a specialist and perhaps surgery . He went to the doctor and the
>
>>>
>
>>>
>
>>doctor told his do whatver
>
>>
>
>>
>
>>>he wants and stop when it hurts
>
>>>
>
>>>
>
>>>
>
>>>My Grandmother seems to be doing a lot better! Since the Tuesday afteer
>
>>>
>
>>>Mother's Day, she has had pneumonia , couldn't eat or drink, and kidney
>
>>>
>
>>>failure . She was in and out of the hospital three times.
>
>>>
>
>>>
>
>>
>
>>
>
>>
>
>>
>