yes, it is painful, but for me keeping the disc from
being pulled further out is worth the pain. but, yess
kids need the sedation.

--- Linda Walker <[log in to unmask]> wrote:

> Ken,
>
>          My grandson gets botox shots about nine in
> all so far only in his
> legs. He goes under light sedation for this and I
> think the doctors doing
> this without sedation to kids are wrong. It really
> hurts. There is no
> reason for that.  The first few times we did this to
> him we did NOT even
> know sedation was an option. So that's one reason I
> am on this list is to
> learn from the people who have already been there.
>          There appear to be few side effects from
> this medication although
> one seems to be that his arms swing more wildly
> afterwards and I read that
> this can happen as a side effect and that the botox
> can cause the
> spasticity to move around int he body. Weird. He has
> a good appetite and
> mood and energy level after. He is not quite seven
> and I am just starting
> to talk with him about trying to notice how this
> affects him and if he can
> tell when it wears off since there will come a time
> when he will be making
> these hard medical decisions for himself.
>          Some therapists have recommended oral
> baclofen or the pump to us
> but so far we think the botox is the way to go.
>
> All the best to everyone,
>
> Linda
>
> At 12:58 AM 7/7/2005, you wrote:
> >Ken,
> >
> >Where, how often, and how many botox injections are
> you getting?  Janet
> >gets really drowsy with the level of oral baclofen
> that she takes now,
> >so she's taking Provigil (modafinil (sp?)) to
> counteract that.  Feel
> >free to respond "off-list" if you'd prefer.
> >
> >
> >Kendall
> >
> >Kendall Corbett
> >
> >An unreasonable man (but my wife says that's
> redundant!)
> >
> >The reasonable man adapts himself to the world; the
> unreasonable one
> >persists in trying to adapt the world to himself.
> Therefore, all
> >progress depends on the unreasonable man.
> >
> >-George Bernard Shaw 1856-1950
> >
> >-----Original Message-----
> >From: ken barber [mailto:[log in to unmask]]=20
> >Sent: Wednesday, July 06, 2005 7:47 PM
> >To: [log in to unmask]
> >Subject: Re: CP and the baclofen pump
> >
> >i can not take oral baclofen, or Dantrium becouse
> of
> >side effects, but, zanaflex and botox is working
> well
> >for me. everybody different.
> >  i imagine that i'd have the side effects no
> matter
> >how the baclofen was delivered.
> >
> >--- Kendall David Corbett <[log in to unmask]> wrote:
> >
> > > Does anyone have any experience with using a
> > > baclofen pump (either
> > > personally or professionally?).  Janet and her
> > > neurologist are having a
> > > hard time getting her spasticity under control
> with
> > > oral baclofen,
> > > Dantrium, and Valium.  It looks like the next
> best
> > > option is probably
> > > the pump.  We'd like to hear about any of your
> > > experiences, good or bad,
> > > to help her/us with that decision.  She's
> presently
> > > getting PT,
> > > including iontophoresis (sp?) to help with the
> > > spasticity in her arms.
> > > Her doc has diagnosed a whole bunch of syndromes
> in
> > > her dominant (left)
> > > hand/arm, including thoracic outlet syndrome and
> > > cubital tunnel
> > > syndrome.  The ionto seems to be helping with
> the
> > > pain somewhat, and the
> > > PT is somewhat helpful, but our insurance limits
> PT
> > > for something not
> > > related to a specific injury to 10 in a calendar
> > > year.  As she's using
> > > her right arm more to compensate for decreased
> > > function in the left,
> > > it's starting to hurt, too.
> > >
> > >
> > >
> > > Kendall and Janet Corbett
> > >
> > >
> > >
> > > An unreasonable man (but my wife says that's
> > > redundant!) and a
> > > reasonable woman (when she's not in too much
> pain.)
> > >
> > >
> > >
> > > The reasonable man adapts himself to the world;
> the
> > > unreasonable one
> > > persists in trying to adapt the world to
> himself.
> > > Therefore, all
> > > progress depends on the unreasonable man.
> > >
> > >
> > >
> > > -George Bernard Shaw 1856-1950
> > >
> > >
> > >
> >
> >
> >__________________________________________________
> >Do You Yahoo!?
> >Tired of spam?  Yahoo! Mail has the best spam
> protection around
> >http://mail.yahoo.com
>




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