hi Betty. Welcome here. Three years ago I was having a pain in my back and
my leg. I was very stif and my phisioterapist did not do anything for me. I
talked to my doctor about it and she wanted me to take more medicine but I
said no, because I am an alcoholic. But my doctor talked to another doctor
who was very interested in giving me something better than medicine. He
asked me if I would like to get a brain stimulation. No I have it and I am
better in my movement and I do not have a pain. I am happy with it. The
other day I got a cochlear implant because I am deaf. I will be hearing
next Wednesday I am bit nervous about it because I have not been hearing
since I was twenty five. If you would like you can talk to my father who is
a doctor too. I love him. My mother is not alive anymore. I miss her. I
hope that you and your daughter are fine. Greetings from Iceland
Asdis

At 22:39 1.8.2003 -0400, you wrote:
>Hi,
>I joined the list on the advice of Pam...and here I am introducing myself on
>the advice of Kat!  It first I thought I was on the wrong list!..Its great you
>find other things to converse about besides CP.
>
>I am the mother of a grown child/adult with CP.  I am on the CPP  list and am
>finding that the older my daughter gets the less helpful the list is.  I do
>remain on the list and respond where there is something encouraging I can say
>to a parent with a child similar to my own.
>
>I always tell parents...no one knows your child like you do!...I raised her
>on that prospective.
>
>Heather is almost 27 now and was diagnosed with CP at age 2.  She had her
>first surgery at age 3 and 8 or so more since.  A few were due to problems
>other
>than her CP...but still related to her CP.  Shes the type of person when the
>Dr says...1 percent will have this problem...Shes that 1 percent always.
>
>Heather did well in school.  Was an Honors student in HS and went on to study
>Journalism in Boston.  She spent the summer between HS and College traveling
>in France with an exchange student who spent time with us.  While in college
>she also went off to Europe for a year where she lived in a castle in Holland
>and traveled much of Europe.  So she has been more than successful.  Shes
>now a
>sportswriter here in NJ.  She enjoys her job but its time for her to move on
>to other horizons...meaning maybe a bigger paper or PR.
>
>The older Heather gets the harder it is to find Drs who are familiar with CP
>in Adults.  When we do find one we tend to hold on to that DR.  Shes has her
>Dr horror stories as well.  At the moment she is having pain in her
>legs.  From
>her toes to her hips.  Not knowing who to see we started out at her
>podiatrist who did her last Legthenings.  Trust me..25 years ago I wouldnt
>have let a
>podiatrist touch her.  This guy is great.  We spent an hour with him going
>over
>her probelms.  He sent her to see a Rheumatologist.  Shes had lots of test
>done and we are awaiting the results.  Shes also had problems with
>Uveitis...which could mean an immune problem.  So far shes still in pain
>and the
>Anti-inflammatory isnt helping her at all.  She wakes a few times a
>night.  I made her
>an appt to see I think his name is Dr Nuzzeo in North Jersey.  I emailed him
>and he said he would see her.  She doesnt go until Sept 3.  She cried what
>am I
>supposed to do until then.  I have no idea what to tell her.  Shes been
>exercising to see if that improves it.  So far it hasnt.
>
>Last night she won an audition for a sports announcer at a contest in
>Philadlephia.  She will do a radio show and sports on the local comcast
>station.  We
>are more than excited for her.  She also won a trip and $500 to spend on
>Jewelry!  She went against 4 men and the lady won!
>
>Hopefully we will find the reason for her pain in the meantime.  Shes one who
>can stand pain and lives with it well.  It doesnt usually keep her from her
>daily routines.
>
>Thank you for listening...as my kids say...Mom get to the point!  I guess you
>can see why I have a daughter who writes!..
>
>I would appreciate any thoughts anyone could give me on the problems shes
>having.  Maybe someone has been this route.  It cant help to ask!
>
>Enjoy your weekend,
>
>Betty Green
>Wenonah, NJ

Asdis night owl mom of the purring cats, Agatha Mist queen of our apartment
and Odinn Thistill my little baby!!!
implanted with CI NC24 18 Juni 2003.
[log in to unmask]
[log in to unmask] msn messenger
asdisj_astradsdottir yahoo id.
Iceland.
:
Faith, Hope and Love.