try the term supported living... maybe look at / for the supported living
institute, maybe they can tell you where to look.

Tamar Mag Raine
[log in to unmask]
IM: tamarmag48
Oakland Mayor's Commission on People with disabilities


> [Original Message]
> From: Kathy Pink <[log in to unmask]>
> To: <[log in to unmask]>
> Date: 9/15/2004 9:48:54 AM
> Subject: Re: Your summer
>
> I couldn't find anything good on SL on the Web.  I need 24-Hour wake
staff.
>
>
> If I was going to stay home in October, (which, I can't) I needed at least
> three people per day, plus a back up for each shift.
>
>
>
>
>
>
>
>
>
>
> Kathy Jo Pink
> [log in to unmask]
> AOL IM ScreenName:  kjptde
>
> -----Original Message-----
> From: St. John's University Cerebral Palsy List
> [mailto:[log in to unmask]]On Behalf Of Tamar Raine
> Sent: Tuesday, September 14, 2004 2:43 PM
> To: [log in to unmask]
> Subject: Re: Your summer
>
>
> in the first place you can wait until they get back from vacation.
> secondly, as i told you, the difference between IL and SL is simply the
> number of hours of support. for instance at my agency IL is about 5-7
hours
> a week, so obviously, more than that is SL. Some people have a paid
> roommate for the night time, others just have 4 shifts every day and the
> night staff sleeps on a spare bed. I do think you might find SL by looking
> on the web for Wisconsin. (supported living is different than assisted
> living, which is for senior citizens).
>
> Whoever wrote that your staff has the right to be safe from physical harm
> is absolutely correct.
>
> in October there is a Supported Living conference in Sacramento Calif. I
> will see if there is info i can get for you.
>
> why do your parents think you need to train ten people?
>
> Mag
>
> Tamar Mag Raine
> [log in to unmask]
> IM: tamarmag48
> Oakland Mayor's Commission on People with disabilities
>
>
> > [Original Message]
> > From: Kathy Pink <[log in to unmask]>
> > To: <[log in to unmask]>
> > Date: 9/14/2004 10:15:22 AM
> > Subject: Re: Your summer
> >
> > Mag, I don't know if there are any Supported Living Organizations in my
> area
> > or not.  Should I do a Web Search ?  What's the difference between
> > Independent Living and Supported Living?  My parents say it is too close
> to
> > their vacation to hire and train ten people.  (4 weeks)
> >
> >
> >
> > There are three people that I wrote about yesterday to you as far as
> > Cornerstone goes.  I only complained about one.
> >
> >
> >
> > Yesterday, I met with my county nurse.  (We meet every two months.)  She
> was
> > all for Independent Living.  (There are two businesses in my town that
> > provide caseworkers.)  The County Nurse told me that the business that I
> get
> > my caseworker from doesn't support independent living where as the other
> one
> > does.  I used to to get my caseworker from the other agency , I don't
know
> > why I was switched.  My parents were complete opposite yesterday.  As
they
> > were talking about my own place down the road.  They talked about how
> > expensive it would be.
> >
> >
> >
> > Kathy
> >
> > Kathy Jo Pink
> > [log in to unmask]
> > AOL IM ScreenName:  kjptde
> >
> >
> >
> >
> >
> >
> >
> >
> >
> >
> >
> > -----Original Message-----
> > From: St. John's University Cerebral Palsy List
> > [mailto:[log in to unmask]]On Behalf Of Tamar Raine
> > Sent: Monday, September 13, 2004 7:35 PM
> > To: [log in to unmask]
> > Subject: Re: Your summer
> >
> >
> > Kathy Jo, are there any supported living organizations in your area?
That
> > is what I, and Gary have. We get Supported Living services because we
need
> > more hours of help than somebody who is an independent Living client.
> your
> > dept of developmental services may know of an agency and then they could
> > help you move out into your own place. it sounds like your parents are
> > being passive aggressive -- in that they offer you the basement to live
> in,
> > but then they say they don't want anybody in their house while they're
> > gone.
> >
> > If this person at cornerstone is doing those things, they need to move
> that
> > person out! have you complained?
> >
> >
> >
> > Tamar Mag Raine
> > [log in to unmask]
> > IM: tamarmag48
> > Oakland Mayor's Commission on People with disabilities
> >
> >
> > > [Original Message]
> > > From: kat <[log in to unmask]>
> > > To: <[log in to unmask]>
> > > Date: 9/13/2004 3:08:46 PM
> > > Subject: Re: Your summer
> > >
> > > If they are conditions you can't live with - and they do sound pretty
> > > bad indeed - you should have other choices.  Having said that, I'm
> > > afraid that most residental programs have problems such as those you
> > > describe because the care facilities are normally woefully
> > > understaffed.  However even for that situation, you should feel
> > > empowered to complain if you're treated in such a manner by another
> > > resident or staff member.  No one should need to put up with sexual
> > > abuse.
> > >
> > > I'd advise you to document each incidence so you have proof of such
> > > things.  Log them in your laptop, etc. with dates, names and places.
> > >
> > > Kat
> > >
> > > On Mon, 2004-09-13 at 13:55, Kathy Pink wrote:
> > >
> > > > They propose I go to Cornerstone when they are in Branson.  (Yes, it
> is
> > > > Branson, MS that I'm talking about.)  No one in my county gets as
much
> > money
> > > > as I do.  I know that is wrong because I know of other people that
can
> > have
> > > > 24-Hour Care that are in my county, bit, they are all elderly.
> > > >
> > > >
> > > >
> > > > Some of the reasons that I don't like Cornerstone is because what
the
> > > > permanent clients say / do.  This one particular client says
"Doctors
> > > > cripple people" and then without my or anybody's permission got in
my
> > power
> > > > chair and took off.  When I went to my bedroom for personal time (I
> had
> > my
> > > > own single bedroom.) I shut the door.  This same client came in.
The
> > same
> > > > client salted my food without asking or getting my permission .
This
> > same
> > > > client has accused other people for taking her personnel belongings
> > .Another
> > > > client has asked me if I would go to bed because him and if I would
> love
> > > > him. There is another client that said or did something, but, I
don't
> > > > remember what.
> > > >
> > > >
> > > >
> > > > This weekend, I wrote a letter to my case manager asking for a
> different
> > > > respite place .  it will probably be a nursing home or a home for
the
> > > > Mentally Retarded.
> > > >
> > > >
> > > >
> > > > Kathy Jo
> > > >
> > > > Kathy Jo Pink
> > > > [log in to unmask]
> > > > AOL IM ScreenName:  kjptde
> > > >
> > > > -----Original Message-----
> > > > From: St. John's University Cerebral Palsy List
> > > > [mailto:[log in to unmask]]On Behalf Of kat
> > > > Sent: Sunday, September 12, 2004 1:59 PM
> > > > To: [log in to unmask]
> > > > Subject: Re: Your summer
> > > >
> > > >
> > > > So what do they propose you do while they're in Branson?  (I assume
> > > > you're talking about Branson, MS).  As for not being able to afford
> > > > 24-hour care, I think the state has to help you get that if that is
> what
> > > > they think you need.
> > > >
> > > > You've said you don't like Cornerstone.  What exactly don't you like
> > > > about Cornerstone?  You know, no matter where you go or what you do,
> > > > there will be rules to follow, things you'll have to do even though
> you
> > > > don't like them.  I live by myself, and I don't particularly like
> > > > getting up early but I do it.  If I don't, I don't get to work on
time
> > > > and I'd get fired.
> > > >
> > > > There are trade-offs in any path in life.  It's just a matter of
> finding
> > > > those you can live with.   Now I'll get off my soapbox! :p
> > > >
> > > > Kat
> > > >
> > > > On Sun, 2004-09-12 at 14:05, Kathy Pink wrote:
> > > >
> > > > > It isn't only my parents that say I can't live alone.  I have a
> > history of
> > > > > hurting myself and others.  My county social worker says I need
> > 24-Hour
> > > > > Care.  I met with The Independent Living Specialist , my social
> > worker,
> > > > and
> > > > > my parents Thursday.  My parents and my social worker were mad
with
> me
> > > > > because I contacted the Center Of Independent Living.  No two CP
> > Cases are
> > > > > alike.  I can't afford 24-Hour Care.
> > > > >
> > > > >
> > > > >
> > > > > My parents are going to Branson in October and they said I can't
> stay
> > here
> > > > > because it is their house.  People that worked here have stolen,
> some
> > > > people
> > > > > have forgotten , not showed, or they were three hours late.
> > > > >
> > > > >
> > > > > Kathy Jo
> > > > > Kathy Jo Pink
> > > > > [log in to unmask]
> > > > > AOL IM ScreenName:  kjptde
> > > > >
> > > > >
> > > > >
> > > > >
> > > > >
> > > > >
> > > > >
> > > > >
> > > > >
> > > > >
> > > > >
> > > > >
> > > > > -----Original Message-----
> > > > > From: St. John's University Cerebral Palsy List
> > > > > [mailto:[log in to unmask]]On Behalf Of Kathy
> > > > > Sent: Monday, September 06, 2004 8:14 PM
> > > > > To: [log in to unmask]
> > > > > Subject: Re: Your summer
> > > > >
> > > > >
> > > > > He's wrong.  There's assistive technology to help you with such
> > things,
> > > > and
> > > > > if
> > > > > not that, aides can help you.  What will you do when your parents
> die?
> > > > You
> > > > > need to start planning ahead and getting ready to be on your own.
> > > > >
> > > > > Kat
> > > > >
> > > > > On Monday 06 September 2004 8:34 pm, Kathy Pink wrote:
> > > > > > My dad said in order to live independently you have to be able
to
> > talk,
> > > > > > walk, or feed yourself and I can't do any.
> > > > > >
> > > > > > Kathy Jo Pink
> > > > > > [log in to unmask]
> > > > > > AOL IM ScreenName:  kjptde
> > > > > >
> > > > > >
> > > > > >
> > > > > >
> > > > > >
> > > > > >
> > > > > >
> > > > > >
> > > > > >
> > > > > >
> > > > > >
> > > > > > -----Original Message-----
> > > > > > From: St. John's University Cerebral Palsy List
> > > > > > [mailto:[log in to unmask]]On Behalf Of Tamar Raine
> > > > > > Sent: Sunday, September 05, 2004 9:51 PM
> > > > > > To: [log in to unmask]
> > > > > > Subject: Re: Your summer
> > > > > >
> > > > > >
> > > > > > I can get in and out of my wheelchair, and I can feed myself,
> > though I
> > > > > need
> > > > > > somebody to cut my food.  and I talk ok, not great, but i can
> > > > communicate.
> > > > > > But regardless, each of us is different, and please don't
compare
> > > > yourself
> > > > > > to anybody.
> > > > > >
> > > > > > Tamar Mag Raine
> > > > > > [log in to unmask]
> > > > > >
> > > > > > The reasonable man adapts himself to the world; the unreasonable
> one
> > > > > > persists in trying to adapt the world to himself.
> > > > > > Therefore, all progress depends on the unreasonable man.
> > > > > > -George Bernard Shaw 1856-1950
> > > > > >
> > > > > > IM: tamarmag48
> > > > > > Oakland Mayor's Commission on People with disabilities
> > > > > >
> > > > > > > [Original Message]
> > > > > > > From: Kathy Pink <[log in to unmask]>
> > > > > > > To: <[log in to unmask]>
> > > > > > > Date: 9/5/2004 12:29:23 PM
> > > > > > > Subject: Re: Your summer
> > > > > > >
> > > > > > > Mag,
> > > > > > >
> > > > > > > Can you walk, talk, or feed yourself ? Kathy Jo
> > > > > > >
> > > > > > > Kathy Jo Pink
> > > > > > > [log in to unmask]
> > > > > > > AOL IM ScreenName:  kjptde
> > > > > > >
> > > > > > >
> > > > > > >
> > > > > > >
> > > > > > >
> > > > > > >
> > > > > > >
> > > > > > >
> > > > > > >
> > > > > > >
> > > > > > >
> > > > > > >
> > > > > > >
> > > > > > > -----Original Message-----
> > > > > > > From: St. John's University Cerebral Palsy List
> > > > > > > [mailto:[log in to unmask]]On Behalf Of Tamar Raine
> > > > > > > Sent: Friday, September 03, 2004 5:15 PM
> > > > > > > To: [log in to unmask]
> > > > > > > Subject: Re: Your summer
> > > > > > >
> > > > > > >
> > > > > > > Kathy Jo,
> > > > > > > You know I have an average of 5 hours of assistance a day.
> Others
> > need
> > > > > >
> > > > > > more
> > > > > >
> > > > > > > assistance and yet they have their own apartments. So, you can
> do
> > it,
> > > > > > > even if they say 24 hour care is too expensive, it is your
right
> > to
> > > > live
> > > > > > > where you want to live. The law is called Olmstead, and I know
> > that
> > > > > > > States are having trouble helping everybody that needs it,
but I
> > urge
> > > > > you
> > > > > > > not to give up. it may take a year. but don't give up.  in the
> > > > meantime
> > > > > > > there are things you can do, like have somebody teach you
about
> > money.
> > > > > > >
> > > > > > > Mag