if you are currently your own guardian, why would they do that to you, if
not to force you to do their will? There's something bad going on there
and I hope you call the center that Kendall gave you info on.
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
[log in to unmask]
How can we expect new results if we do what we've always done?
War is outdated for the 21st century!
> [Original Message]
> From: Kathy Jo Pink <[log in to unmask]>
> To: <[log in to unmask]>
> Date: 7/19/2005 11:45:03 AM
> Subject: Re: I'm Back
>
> Sorry, Mag, (For yelling)
>
> By guardianship, I mean someone else would make all of my decisions ,
> handle all of my money, and I couldn't vote in public elections .
>
>
>
> Kathy Jo
>
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> Magenta Raine wrote:
>
> >OKAY, Kathy Jo...
> >
> >What do you mean by guardianship?
> >
> >Mag
> >
> >~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
> >[log in to unmask]
> >How can we expect new results if we do what we've always done?
> >War is outdated for the 21st century!
> >
> >
> >
> >
> >>[Original Message]
> >>From: Kathy Jo Pink <[log in to unmask]>
> >>To: <[log in to unmask]>
> >>Date: 7/17/2005 10:17:20 AM
> >>Subject: Re: I'm Back
> >>
> >>mag, Mag, MAG,
> >>
> >>
> >>
> >>NO, I DON'T WANT TO STOP GOING TO CORNERSTONE. (unless I find something
> >>to do that is different) i DON'T WANT MY PARENTS TO KICK ME OUT . If I
> >>was to stop going to Cornerstone, come January first, 2006, I will be at
> >>Cornerstone all of the time and lose my guardianship. No, they don't
> >>work for Cornerstone or own it. I go to Cornerstone just so they can
> >>have a break.
> >>
> >>
> >>
> >>Kathy Jo
> >>
> >>
> >>
> >>
> >>
> >>
> >>
> >>
> >>
> >>Magenta Raine wrote:
> >>
> >>
> >>
> >>>Kathy Jo,
> >>>So, stop going to cornerstone! Let your parents kick you out. You want
to
> >>>be on your own anyway... Do they own cornerstone? Do they work for
> >>>Cornerstone? It sure sounds like your parents have a financial stake in
> >>>keeping you either at home, or at Cornerstone. Why else would they be
so
> >>>mad about you leaving the day program? They have no right to hold you
> >>>
> >>>
> >back,
> >
> >
> >>>so, don't let them manipulate you.
> >>>
> >>>Mag
> >>>
> >>>~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
> >>>[log in to unmask]
> >>>How can we expect new results if we do what we've always done?
> >>>War is outdated for the 21st century!
> >>>
> >>>
> >>>
> >>>
> >>>
> >>>
> >>>>[Original Message]
> >>>>From: Kathy Jo Pink <[log in to unmask]>
> >>>>To: <[log in to unmask]>
> >>>>Date: 7/16/2005 3:01:03 PM
> >>>>Subject: I'm Back
> >>>>
> >>>>Hello Everybody,
> >>>>
> >>>>
> >>>>
> >>>>For those who are new or don't remember me. My name is Kathy Jo Pink
. I
> >>>>am a thirty -four year old born with Cerebral Palsy and because of
this
> >>>>I need help eating, going to the bathroom, brushing my teeth, taking a
> >>>>bath (or a shower), washing my hair, shaving , cutting my nails,
> >>>>dressing, brushing my hair, etc. Basically I need total care much like
> >>>>an infant.
> >>>>
> >>>>
> >>>>
> >>>>I left C-PALSY because I went to an Easter Seals Camp in June. I will
be
> >>>>leaving the list in a month again to go to Camp Courageous of Iowa.
> >>>>
> >>>>Are JerkyMovements a characteristic of all cases of Cerebral Palsy?
> >>>>
> >>>>I am stillfighting with Independent Living. Last November, I agreed to
> >>>>go to Cornerstone one day a week (just for Dayservice). That was a BIG
> >>>>mistake . I said yes because My Mom wanted it and wanted a break and
> >>>>Cornerstone was building on...well, about a month ago, when I wanted
an
> >>>>assessment for somewhere else, my caseworker said okay and stop going
to
> >>>>Cornerstone. My parents said (after my caseworker left) if you stop
> >>>>going to Cornerstone , once a week, come the first of the next year,
you
> >>>>will be kicked out of the house and be at Cornerstone permanently and
> >>>>lose your guardianship. I have been looking in to another options . My
> >>>>Independent Living Specialist says , "
> >>>>You are correct, ILR is your local independent living center. However,
> >>>>our agency which has a personal care services department - unlike
other
> >>>>ILC's - only offers that service in the La Crosse area. One of the
> >>>>things we do is to help people locate other options for personal care
> >>>>services or living options. My personal preference is that if a person
> >>>>has a county case worker, that case worker should be doing that
service.
> >>>>If your case worker needs more resources to help you, I'd be happy to
> >>>>help in any way I can. But like I said, I prefer you work with your
case
> >>>>worker - She is there to help you. If your case worker is unwilling to
> >>>>help you, you can let me know and I can assist you with advocating or
> >>>>helping you find services.
> >>>>Hope your search is going well. Let me know if you or your case worker
> >>>>need help." and
> >>>>
> >>>>however, what your case manage presents may be the only
> >>>>options available in your area and for your funding source. If you are
> >>>>not satisfied, let her know and ask why those are the only options.
The
> >>>>area you live in does not have a lot of options to begin with, so you
> >>>>may not have much to choose from.Yesterday, I wrote a letter to my
> >>>>
> >>>>
> >>>>
> >>>>
> >>>caseworker, I said As you know, I’m not completely satisfied with
> >>>
> >>>
> >>>
> >>>
> >>>>Cornerstone. Some of the things I like
> >>>>about it are the staff and
> >>>>drivers, some of the outings and some
> >>>>of the afternoon activities . . Some of the reasons that I don’t
like
> >>>>
> >>>>
> >>>>
> >>>>
> >>>are
> >>>
> >>>
> >>>
> >>>
> >>>>the morning programming, I am not given a choice what I want to do
when
> >>>>
> >>>>
> >>>>
> >>>>
> >>>I’m
> >>>
> >>>
> >>>
> >>>
> >>>>there (at dayservice), I don’t like some of the the other clients , I
> >>>>
> >>>>
> >>>>
> >>>>
> >>>don’t
> >>>
> >>>
> >>>
> >>>
> >>>>like going to bed early the night before and getting up early. Is
> >>>>
> >>>>
> >>>>
> >>>>
> >>>Cornerstone my only option for Dayservice
> >>>
> >>>
> >>>
> >>>
> >>>>and Respite ? If so, why? If it’s my only option, I am going to get
> >>>>somebody else involved . How is Room
> >>>>and Board paid for Residential Services?
> >>>>The REM assessment is free. Knowing that, can I have a REM Assessment
> >>>>done and still continue with Cornerstone?
> >>>>Until I find something else that I like and can afford , I will be
> >>>>willing to continue with Cornerstone.
> >>>>Does Unified have a billing number that could be used for personal
care?
> >>>>
> >>>>
> >>>>
> >>>>
> >>>>
> >>>>
> >>>>On the Fourth of July, my Dad was out spraying in the P.M. in the
back
> >>>>
> >>>>pasture. He had the 4-wheeler and a load of spray spraying. He was
> >>>>
> >>>>going along the ditch line and the 4-wheeler and load tipped over on
top
> >>>>
> >>>>of him. He laid for about 20 minutes before he could move and crawled
> >>>>
> >>>>out. He was in so much pain when he finally got back to the house.
He
> >>>>
> >>>>said I have to go in. They x-rayed his back and he has a compression
> >>>>
> >>>>fracture. He compressed the vertebrae. He is in alot of pain. They
> >>>>
> >>>>gave him four shots and pain pills. The doctor advised him to stay in
> >>>>
> >>>>the hospital over night but he wouldn't. He must be very careful and
> >>>>
> >>>>any change in his condition he must get to the hospital immediately.
> >>>>
> >>>>
> >He
> >
> >
> >>>>
> >>>>
> >>>has a brace. If the
> >>>
> >>>
> >>>
> >>>
> >>>>pain doean't have of let up, he would have gone to Dubuque (Iowa) to
> >>>>see a specialist and perhaps surgery . He went to the doctor and the
> >>>>
> >>>>
> >>>>
> >>>>
> >>>doctor told his do whatver
> >>>
> >>>
> >>>
> >>>
> >>>>he wants and stop when it hurts
> >>>>
> >>>>
> >>>>
> >>>>My Grandmother seems to be doing a lot better! Since the Tuesday
afteer
> >>>>
> >>>>Mother's Day, she has had pneumonia , couldn't eat or drink, and
kidney
> >>>>
> >>>>failure . She was in and out of the hospital three times.
> >>>>
> >>>>
> >>>>
> >>>>
> >>>
> >>>
> >>>
> >>>
> >
> >
> >
> >
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