i have the pump and it works wonderfully for me, I have dystonia and the
movements are gone. Asdis
-------Original Message-------
From: Elizabeth Thiers
Date: 06/07/06 11:24:01
To: [log in to unmask]
Subject: Re: [Fwd: [OZAdvocacy] medical information please?]
Sorry for taking a bit of time to reply. The Baclofen pump is used for all
sorts of spastic conditions including MS, CP and spinal cord injuries. The
surgery if done with a good surgeon is minimally invasive, there is a cord
placed in the spinal cord with a pump placed just below the skin. The pump
needs to be accessable for medication changes and fillings.
Just like with CP your friend will need to be able to do follow up care, and
monitor the pump, your friend should also be able to get to the doctor or a
knowledgeable Emergency Room, just in case the pump fails since, coming off
the Baclofen cold turkey is dangerous. However, they are fairly well
tolerated and do a lot to relieve pain and spasticity. Unfortunately, no my
part of Florida, not a lot of children get the pumps but, one of our PTs has
several kids given them.
My best advice is go to a center that specializes in spasticity care and
don't be the guinea pig.
Beth t the OT
> -----Original Message-----
> From: Cerebral Palsy List [mailto:[log in to unmask]]
> On Behalf Of Rayna
> Sent: Tuesday, May 23, 2006 7:31 AM
> To: [log in to unmask]
> Subject: [Fwd: [OZAdvocacy] medical information please?]
>
> Hi everyone,
>
> I'm forwarding on an enquiry from a friend here in Australia
> who has a SCI and has had Baclofen recommended to her. Don't
> know what difference there would be in experience with the
> pumps between CP and SCI, but I thought that a few of you
> would have some info/experiences that might be useful.
>
> Beth the OT, do you have any useful knowledge in this area?
>
> Replies can be send directly to Sue, or I'm happy to forward
> on anything that is sent to the list.
>
> Thanks, guys!
>
> Rayna
>
>
> -------- Original Message --------
> Subject: [OZAdvocacy] medical information please?
> Date: Sun, 21 May 2006 20:38:16 +1000
> From: sue salthouse <[log in to unmask]>
> Reply-To: [log in to unmask]
> To: OZadvocacy <[log in to unmask]>
>
>
>
> Dear All,
>
> Is there anyone out there in cyberspace who has any
> information about the effectiveness of Baclofen Pumps for
> control of muscle spasm for people with spinal cord injury?
>
> Rehab. Specialists at both Royal North Shore and Canberra
> Hospital have recommended one for me. However am very
> reticent about having invasive surgery, and do not know
> anyone who has one. Would need to be convinced that they are
> effective before going down that pathway.
>
> Any thoughts on questions to ask would be welcome.
>
> thanks in anticipation, Sue
>
> Sue Salthouse
>
> Email: [log in to unmask] <mailto:[log in to unmask]>
>
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