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Subject:
From:
Jonathan Rand <[log in to unmask]>
Reply To:
St. John's University Cerebral Palsy List
Date:
Fri, 4 Nov 2005 07:41:44 -0500
Content-Type:
text/plain
Parts/Attachments:
text/plain (126 lines)
Kat,
   <:)>

Listen! r u, (or any1 else), getting extrainious characters in messages u
receive from the group?  Strange characters from another planet, mixed in
with the text?

                     JR



>From: Kathleen Salkin <[log in to unmask]>
>Reply-To: "St. John's University Cerebral Palsy List"
><[log in to unmask]>
>To: [log in to unmask]
>Subject: Re: I'm new...
>Date: Fri, 4 Nov 2005 05:33:10 -0500
>
>*blinks*  Wow,  you sound just like an old boyfriend of mine who =20
>talks the same way (and writes the same way, too).  He didn't have CP =20=
>
>though, but PPS which was actually a bit strange as he'd contacted =20
>polio as a child but never knew it.  And along come all these =20
>symptoms some thirty years later...!  He was totally gobsmacked when =20
>the doctors told him.
>
>I'm Kat, one of the list admins, who lives and works as an HRIS =20
>Analyst in NC.  I have spastic paraplegia and have been in a =20
>wheelchair for almost 10 years.
>
>Welcome to the list, Jon!
>
>Kat
>
>
>On 2 Nov 2005, at 16:21, Jonathan Rand wrote:
>
> > Hi,   I=92m new.  I should introduce myself.  I=92m arriving at a very =
>=20
> > sad time
> >
> >  :(  2 of my friends died recently.  (Within the past year.)  So =20
> > when I
> > hear these things, it hits home.
> >
> > I=92m Jonathan Rand.  Spastic, athetoid quad
> >  Nonverbal.  Official diagnosis
> > of CP but no one knows wats really going on.  The condition acted =20
> > like MS at
> > first
> >  Episodal, progressive
> > ..  Now, static.  I=92m also visually impaired,
> > had open heart surgery for a congenital condition
> > .  & that=92s most of it,
> > although not all!  :)
> >
> > I WAS a musician & an artist.  I wrote 50 songs, over the years.  I =20=
>
> > think
> > EVERYTHING is lost now.  There=92s no written record or recordings of =
>my
> > latest & best stuff, & after years of not being able to practice =20
> > the music,
> > its faded from my memory.
> >
> > Call me PROFESSOR GADGET, because I designed my own assistive =20
> > devices to
> > help me shave & open doors etc. .  I only just got my mouse =20
> > alternative up &
> > running.  I call it The SNAKE.  I=92m assembling a second snake to =20
> > enable me
> > to draw again.  I=92m hoping to be able to make drawings of a speech
>=20=
>
> > machine I
> > invented.  I think it=92ll enable someone to generate speech at a =20
> > near normal
> > rate of speed.  No waiting while u type, =93look,
> >
> >
> > out,
> >
> >
> >
> >                       he=92s,
> >
> >
> >
> >
> >
> >
> >
> > got,                                  a,
> >
> >
> >
> >
> >
> >
> >
> >
> >
> >                       gun!=94
> >
> >
> > Anyway, I guess that=92s enough?
> >
> > Except 2 say that it=92s a very lonely existance.  I have no normal
> > friendships, & absolutely no love.  Basically, its just me, my =20
> > powerchair,
> > =93=92;GOO-GOO,=94 & my RATHER PRIMATIVE speech machine, =93Little =
>Stevie =20
> > Hawking,=94
> > (=93Stevie,=94 for short)!  Traveling through time, headed for the =20
> > inevidable!
> > :)
> >
> > Sounds depressing?  Well it is!  So I came HERE, looking for people =20=
>
> > who
> > might share some of my experiences.
> >
> > OK, that's really it!  :)
> >
> >                                  JR

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