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Reply To: | St. John's University Cerebral Palsy List |
Date: | Tue, 13 Jan 2004 23:14:13 -0500 |
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Hello, Charlotte!
Welcome to the list. Others have given you excellent advice, and I can only
add to it the fact that Claire can be treated for the pain; she doesn't have
to live with it. Pain management has come a long way in the past 10 years.
I am a 50-year old paraplegic spastic CP in North Carolina and a list
moderator.
Kat
On Tuesday 13 January 2004 10:20 am, don myers wrote:
> Hi,
> I'm lucky to be Mom to a wonderful 17 year old young lady who has a mind of
> her own! She is in the 10th grade in our local MS public high school.
> Claire has been using aug comm for 10 years...now a Pathfinder with a head
> switch. She has spastic quad CP and has endured successfully many
> surgeries...spinal fusion, Baclofen pump and two hip surgeries. The latest
> is my subject of concern. Has anyone out there had a femeral resection? It
> helped the hip pain at first, but is now chronically painful in that hip
> area. Her Dr. injected it w/ steroids about a month ago. No change. Has
> anyone had this chronic pain and used pain management of any sort or
> accupucture? Charlotte
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