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Reply To: | St. John's University Cerebral Palsy List |
Date: | Tue, 29 Jul 2003 09:18:37 -0400 |
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Hi Kyle,
I would think you would need recontructive surgury - as don't you have spasms? You could seriously injure yourself if the incision and surrounding area aren't pieced together well. Have they taken your CP into account? I would get a another opinion - generally one is allowed 2nd and 3rd opinions - if all recommend reconstructive surgery then you have leverage. So perhaps a CP expert would be in order.
Trisha
> Thanks, Beth. Yeah, I already approached my surgeon with that one and he
> said that he would only cut the bare minimum. He's a really good "Joe", and
> I trust him on this one. Laura had surgery about ten years back and he was
> the cutter. I was really impressed with his bedside manner and suturing.
>
> I've been fighting with "peer review" already at the insurance co. At best,
> these folks are LPNs, most don't have any formal medical education at all.
> The doc is as frustrated as I am about their reticence to have someone else
> close. He admits that a plastic surgeon could close better, even with no
> reconstruction. They are pretty adamant about the whole thing--because "the
> book says it's not 'medically or psychologically necessary' for men to have
> reconstruction." If it ain't in the "book", they ain't payin'--pure and
> simple. Our benefits administrator said to me that I have to be careful
> when deciding whether to fight or stand-down as the carriers are becoming
> "hip" to all of the arguments. She said that I've already become a
> statistical liability to the carrier, so I need to pick my battles
> carefully. Still, the "breathing" angle is one I hadn't considered.
> Thanks! I'll call my cutter today and run that past him. Who knows? Maybe
> he can plead the case that with my spastic CP, a second pair of experienced
> hands might be cheaper in the long haul.
>
> Kyle
>
>
> -----Original Message-----
> From: Elizabeth H. Thiers [mailto:[log in to unmask]]
> Sent: Monday, July 28, 2003 4:52 PM
> To: [log in to unmask]
> Subject: Re: Hey all
>
>
> You know, it may delay your surgery a bit but, you can ask for a plastic
> surgeon to close for you. My friend did this when she had her bilateral
> mastectomy. You can tell them you need all the muscles and soft fascia you
> can in order to breath properly. (the pecs are an auxillary breathing
> muscle).
>
> I'd keep harrassing the insurance.
>
> beth t.
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