I found with volunteering with hospice is they are often a great advocate
for the patient and family.  Making sure your wishes are caried through.
They also usually have great pastoral care and counseling.

Beth T the OT

-----Original Message-----
From: St. John's University Cerebral Palsy List
[mailto:[log in to unmask]]On Behalf Of Mag Raine
Sent: Thursday, August 28, 2003 5:23 PM
To: [log in to unmask]
Subject: Re: a peg tube for mom?


Ken, the idea to call hospice is an excellent one. They do wonderful work.
mag


Mag Raine is an author, artist, and serves on Oakland's disability
commission.

--- ken barber <[log in to unmask]> wrote:

yes, i know.
  the doc has order as much drug as is necessary to
keep her comfortable.
  my sisters and one brotherthat lives in the home
town have taken the care givers to task ordering them
to do as the cvhart says.

--- Meir Weiss <[log in to unmask]> wrote:
> The big thing our family did for my late father
>
> Was to to WHATEVER to keep him pain free
>
> Even to take an open tantrum if plain view of the
> hosp
> floor..............
>
> You understand.................
>
> m


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