Did you ever consider a hip brace?

--- pam <[log in to unmask]> wrote:
> On the CP front -
>
> I have mixed CP: athetoid/spastic with a bit of
> dystonia thrown in.  As =
> I've aged, my spasticity has increased
> significantly. A year ago, I had =
> the baclofen pump implanted with great results in
> terms of reduced =
> spasticity. Everything was easier, even speaking,
> and I had much less =
> pain. Unfortunately, I have had weird side effects
> from the baclofen. =
> When I'm receiving therapeutic levels of the drug,
> my torso and head =
> burn like I'm covered with Ben-Gay. Very
> uncomfortable, close to painful =
> after awhile. We are going to add clonidine to the
> pump in May to see if =
> that helps with the burning. I hope so - the pump
> has the potential to =
> be very helpful. BTW, I'm the only one on record who
> has experienced =
> this side effect. I would actually recommend the
> pump for help with =
> spasticity and pain.=20
>
> My most painful area has been my left hip, which is
> arthritic and jumps =
> in and out of its socket. We botoxed my hip last
> week. It has really =
> helped with the pain and my hip is subluxing less. I
> forget how much =
> energy pain consumes until I get some relief!=20
>
> I have also been doing Feldenkrais for many years
> and find it very =
> helpful. If I could receive 3 or 4 Feldy treatments
> a week, I would =
> probably be pain free most of the time. It is so
> frustrating that the =
> state (through Medicaid) will spend thousands on
> pumps, refills, and =
> botox, and would spend tens of thousands on major
> hip surgery, but won't =
> pay for Feldenkrais. The state would save big bucks
> in the long run! I =
> would like to be part of changing this.... I keep
> looking at grants, but =
> money is so tight right now....=20
>
> continued -->


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