Yup.  Thanks, Kathy Jo!

-----Original Message-----
From: Kathy Pink [mailto:[log in to unmask]]
Sent: Tuesday, July 23, 2002 2:00 PM
To: [log in to unmask]
Subject: Re: Surveys needed


Kyle,

Here's how to subscribe to this ListServ: Write
an E-Mail to [log in to unmask]
Leave the subject blank.  In the message portion
write subscribe c-palsy yourfirstname
yourlastname.

Hope this is what you wanted.

Kathy





--- "Cleveland, Kyle E."
<[log in to unmask]> wrote:
> Bobby,
>
> A cursory surf of the net shows there are lots
> of disparate CP forums, web
> pages, etc.  A grassroots movement to get all
> of us hooked up and headed in
> the same direction is what's needed--sort of
> like an electronic wagon train,
> eh?
>
> As far as the survey, Kat & the webpage,
> etc.---"If you build it, they will
> come."  (If anyone remembers "Field of Dreams"
> with Kevin Costner).
>
> I kept reading the same story--our story--over
> and over again:  "Nobody
> wants to deal with CP adults", "UCP isn't worth
> the powder to blow it up",
> "Why do they 'shove you out of the loop' when
> you turn eighteen?", "My
> parents and I were always told that it's a
> 'static' condition."--I could
> have written most of the comments myself.  For
> example, got to
> www.healthboards.com and look at the cerebral
> palsy thread.  Has anyone on
> C-PALSY been over there?
>
> My personal strategy is to point folks to this
> list as (I beleive) it has to
> be the largest forum of its kind.  I lost the
> "signup" instructions years
> ago.  Can someone forward them to me?
> Hopefully, we can start getting the
> word out soon.  I don't know about you guys,
> but I'm pumped!
>
> BTW, I sent my "weirdo at work" story to Ken
> weekend before last.  He was
> supposed to nix my name and forward it on to
> the list.  That happen?
>
> -Kyle
>
> -----Original Message-----
> From: BG Greer, PhD [mailto:[log in to unmask]]
> Sent: Monday, July 22, 2002 4:47 PM
> To: [log in to unmask]
> Subject: Re: Surveys needed
>
>
> In a message dated 7/22/02 2:38:56 PM,
> [log in to unmask] writes:
>
> >Bobby, I'd be happy to let people on the
> Berkeley-disabled list know about
> >the CP study.
>
> Would you alert them, Mag? They can contact me
> directly for copies of the
> survey.
>
> Bobby


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