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"St. John's University Cerebral Palsy List" <[log in to unmask]>
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From:
Kimberlee Ames <[log in to unmask]>
Date:
Mon, 30 Sep 2002 08:37:04 EDT
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"St. John's University Cerebral Palsy List" <[log in to unmask]>
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Thank you, Beth.  That was a great explanation.  I think you hit the nail on
the head regarding the explanation of the dyskinesia.  I'm going to print it
out so I can relate it to new therapists who just can't seem to understand
why Stefan's arms don't do what he wants them to do.  They will tell me that
they've treated kids with CP before, then they have no clue what to do with
the symptoms that Stefan presents with.  ("he's not consistent with his
responses on the switches, we don't think he knows his colors yet...." - when
he's known his colors since he was two - they just don't know how to work
with him)  I'm referring to the school therapists, here, not his private
therapists.

Kimberlee, mom to Stefan (4, CP) and Alex (9)

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