tried it at standard doesage. did not do well. doc wanted to go above the
standad doesage (a patient with cp is not standard), the hmo had a caniption
fit. he said screw it and went to trying another drug.

-----Original Message-----
From: Meir Weiss [mailto:[log in to unmask]]
Sent: Thursday, April 11, 2002 11:46 AM
To: [log in to unmask]
Subject: Re: a little scary to me


Ask about VIOXX OR       the like

www.Vioxx.com

-----Original Message-----
From: St. John's University Cerebral Palsy List
[mailto:[log in to unmask]] On Behalf Of Barber, Kenneth L.
Sent: Thursday, April 11, 2002 11:30
To: [log in to unmask]
Subject: Re: a little scary to me


the doc that found them talked of surgery but since my shoulders and
back spasms, he was unsore how the healing process would be affected, so
no surgery.

-----Original Message-----
From: Meir Weiss [mailto:[log in to unmask]]
Sent: Thursday, April 11, 2002 11:19 AM
To: [log in to unmask]
Subject: Re: a little scary to me


On the bottom of my UNNAFFECTED foot.

The first time I felt paralysed w fear

I couldn't do anything but crawl around like an infant couldn't weight
bare sp?

Lasted  a week then could stand up.

There is wonderous drugs now to deal w bonestrength...............

It is really hopeful

Talk w your dr

m

-----Original Message-----
From: St. John's University Cerebral Palsy List
[mailto:[log in to unmask]] On Behalf Of Barber, Kenneth L.
Sent: Thursday, April 11, 2002 11:11
To: [log in to unmask]
Subject: Re: a little scary to me


how many people on this list have bone spurs in the neck or somewhere
else. and do you think cp contributes to bone spurs developing?

-----Original Message-----
From: BG Greer, PhD [mailto:[log in to unmask]]
Sent: Thursday, April 11, 2002 11:06 AM
To: [log in to unmask]
Subject: Re: a little scary to me


In a message dated 4/11/02 9:00:00 AM, [log in to unmask] writes:

> i have bone spurs in my neck, there are things everywhere that could
>fall. just sort of scary.
>
That  is scary Ken. Maybe you ought to discuss this with your dr.

Bobby