Asdis,
Go ahead and forward my letter to your physicians and tell them my story if
you wish. It is true I can walk without aids, but can only do it for about
three minutes at a time. The rhizotomy I HAD 2 YEARS AGO HELPED WITH
FUNCTION, BUT I AM STILL IN SO MUCH PAIN, TAKING MORPHINE, ETC. I am getting
really close to wanting to throw in the towel. I hate pain, hate narcotics,
hate that they hit my nerve while doing the second study for Intrathecal
baclofen. Its not fair. I have spasms in my eyes, face, arms, legs, etc.
Jenn
----- Original Message -----
From: "Asdis Jenna Astradsdottir" <[log in to unmask]>
To: <[log in to unmask]>
Sent: Saturday, March 16, 2002 7:23 PM
Subject: Re: What Dr. Albright said... not good


> hi Jenn. Dont give up. Please. I understand your PAIN.I have ben in your
> shoes before I got my stimulator 2 years ago and it changed my life for
> good. Can I forward your letters to my doctors, Asdis.
> At 11:06 16.3.2002 -0500, you wrote:
> >Hi Everyone,
> >I found Dr. Albright's response to my video so arrogant that I have
erased
> >it-- basivcally that if he could get his patients FUNCTIONING as well as
I
> >CAN, HE WOULD NOT HAVE A JOB. He knows very well that I DON'T CARE ABOUT
> >FUNCTION, I WOULD GIVE IT ALL UP FOR PAIN RELIEF... I DON'T KNOW WHY
> >PHYSICIANS ALWAYS THINK THAT FUNCTION IS THE BE ALL AND END ALL. DON'T
> >UNDERSTAND. I CANNOT USE MY FUNCTION BECAUSE I AM IN PAIN... NO ONE GETS
IT.
> >I AM ON MORPHINE AND HATE IT... Going to a pain clinmnic over Easter. He
> >also said I DO NOT HAVE DYSTONIA, BUT ITS AL;L THE DOCTORS HERE WOULD
TALK
> >ABOUT.... GRR... OH WELL... I wish I could give my function away and
someone
> >could take away my pain.
> >Jenn
>
> Asdis Jenna Astradsdottir.
> [log in to unmask]
> Iceland.
> :
> Faith, Hope and Love.
>