You're in a lot of pain, and it's terrible to have to wait and to be treated
like your needs are not real.

In a message dated 2/1/2002 3:49:24 PM Eastern Standard Time,
[log in to unmask] writes:


> Hi Everyone,
>
> My sincere apologies if you find my notes lately depressing. I cried
> myself to sleep last night, just praying to God for an answer to this
> pain, for the doctors to see that I am actually human and need help
> desperately. I had held out so much hope when I initially met them at
> Christmas time that they wanted to help me, sided with my plight, did not
> want to see me in pain... But it doesn't appear to be that way-- they just
> want to do the surgery when it is conveinent for them, even though I
> already know (through 2 weeks of my own hard work), that insurance will
> cover whichever strength of Intrathecal Baclofen I may need. I am so sick
> of being in pain, so sick of taking morphine, oxazepam, clonazepam. I am
> so sick of being accussed of things I did not do--like force Dr. Albright
> (a very wonderful neurosurgeon in Pittsburgh who has been my true friend
> through all of this crap), to write a letter on my behalf. I just want
> somebody to help me. I AM NOT TRYING TO BE MEAN, HARASSS THE NEUROLOGIST
> OR NEUROSURGEON...I cry as I WRITE THIS BECAUSE I AM JUST SO TIRED AND
> CAN'T WAIT TILL MAY FOR TREATMENT... I just can't.  How I wish Dr Albright
> could do my surgery.
>
> JENN
>